Prenatal alcohol exposure can harm a baby’s body or brain, and can cause challenges that can last a lifetime. However, not enough is known about Fetal Alcohol Spectrum Disorders (FASD). The Collaborative Initiative on FASD (CIFASD) is a global consortium of 22 research universities and institutes that conduct basic, behavioral, and clinical research on all aspects of FASD, and aim to develop better diagnosis and treatments.
NOFAS leads the education component of CIFASD by promoting CIFASD projects and findings, and strives to support children and adults exposed to alcohol before birth.
CIFASD Research Studies
CIFASD invites people of all ages, with or without a diagnosis, to take part in new and ongoing FASD studies. If you or your child has been diagnosed with an FASD, or you suspect that you or your child my have an FASD, CIFASD invites you to apply. Volunteers may be of any age, however the person completing the registration must be 18 years of age or older.
Help CIFASD discover more about how to prevent, identify and treat FASD!
You can make a difference – We need you!
About Volunteering for CIFSAD Studies
By signing up, you can help scientists find new cures for the far too common but poorly understood disabilities known as Fetal Alcohol Spectrum Disorders. CIFSAD scientists are seeking volunteers like you–and your family members–who have been diagnosed with an FASD or might have been exposed to alcohol before birth. The more individuals living with an FASD or who were prenatally exposed to alcohol who participate in FASD studies, the more that can potentially be learned about who is vulnerable to FASD and the effectiveness of specific treatments. Your experiences and input are vital to new discoveries.
Who can sign up?
Individuals of all ages, with and without an FASD diagnosis are eligible. If you or your child has been diagnosed with an FASD, or you suspect that you or your child may have an FASD, CIFASD invites you to apply. The person completing the registration process must be at least 18 years of age.
FAQ – Frequently Asked Questions
Step 1: Read the Informed Consent document and click “Yes, I Agree”.
Step 2: Provide your name and your real email address so we can contact you.
Step 3: Answer some questions that will help connect you with the researchers in your state: Part 1: Basic facts about your/your child’s age, gender, race, ethnicity, etc. Part 2: Health facts about the FAS diagnosis (if you have it) and the mother’s drinking habits. Part 3: Additional info such as some family history.
If you have any concerns about your rights in the study, contact IU Human Subjects Office at 1-317-278-3458. Also, feel free to send an email to firstname.lastname@example.org and you will receive a reply within 24-48 hours.