National Organization on Fetal Alcohol Syndrome (NOFAS)
1200 Eton Court NW
Washington, DC 20007
Phone: (202) 785-4585
Toll Free: (800) 66-NOFAS
Fax: (202) 466-6456
Contact: Tom Donaldson, President
Develops and implements innovative community based and culturally appropriate prevention, intervention, education and advocacy strategies nationwide. Comprehensive information available by E-mail or postal mail.
Kathleen Mitchell, M.H.S., LCADC
NOFAS Vice President and Spokesperson
National Organization on Fetal Alcohol Syndrome
Parent Contact/FASD Trainer and Maryland Coalition Founder and Co-Chair
Kennedy-Krieger Institute-Fetal Alcohol Spectrum Disorders Clinic – Department of Outpatient Psychiatry
Clinical Research Center: 716 N. Broadway, Baltimore, MD 21205
To make a referral or request a diagnostic evaluation: Toll-Free: 844-334-3211
KKI: Maria Del Carmen Lopez-Arvizu, M.D.
Medical Director, FASD Clinic
Phone: (443) 923-7620
KKI: Eric B. Levey, M.D.
Phone: (443) 923-2740
Dr. Levey is a researcher and pediatrician specializing in the medical care of children with severe developmental disabilities. Currently, he serves as the medical director for both the Pediatric Feeding Disorders Continuum and PACT: Helping Children with Special Needs. He also serves as the associate medical director for the Carter Center for Brain Research in Holoprosencephaly and Related Malformations. He is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. He is also a provider in the Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine.
KKI: Harolyn M.E. Belcher, M.D.
Phone: (443) 923-5933
Joanna Bodurtha MD MPH, Johns Hopkins
Professor of Pediatrics and Oncology
McKusick-Nathans Institute of Genetic Medicine
Johns Hopkins Medical Institutions
600 N. Wolfe St., Blalock 1008
Baltimore MD 21287
Professor of Pediatrics and Oncology
Phone: (410) 955-1699
Susan Rich, M.D., MPH
Psychiatrist in private practice – Potomac, MD
Phone: (301) 251-1190
Johns Hopkins University – Medical School, Department of Genetics
725 N Wolfe Street
601 Preclinical Teaching Building
Baltimore, MD 21287
Phone: (410) 955-3071
Fax: (410) 614-9246
Our Department consists of fourteen laboratories and over 200 people, including faculty, students, postdoctoral fellows and staff. Our mission is two-fold: the advancement of knowledge through basic research in molecular genetics and the development of the next generation of biomedical scientists.
Johns Hopkins University – Medical School, Department of Pediatric Neurology
600 N Wolfe Street – Jefferson 123
Baltimore, MD 21287-8811
Phone: (410) 955-2000
Fax: (410) 614-2297
Contact: Harvey Singer, Thomas Crawford, Ann Comi
Pediatric Neurology at Johns Hopkins works to provide the most up-to-date and highest quality care for children with a wide range of neurological disorders. We strive to better understand the developing nervous system and diseases through cutting edge research. We work with patients and their families to educate them about their disorder and provide them with ongoing care and support.
University of Maryland School of Medicine – Department of Pediatrics
22 S. Greene Street
Baltimore, MD 21201
Phone: (410) 328-6777
Toll Free: (800) 492-5538
Fax: (410) 706-0653
Contact: Virginia Keane, James King
Our goal is to assure every child in Maryland the very best medical care available in an environment dedicated to children and their families, with services fully integrated to meet individual needs.
University of Maryland School of Medicine – Division of Human Genetics
22. S. Greene St.
Baltimore, MD 21201
Phone: (410) 328-3335
Toll Free: (800) 492-5538
Fax: (410) 328-5484
Contact: Eric Wulfsberg
Kennedy-Krieger Institute-Department of Outpatient Psychiatry
Baltimore, MD 21205
The Attachment Place – Tracys Landing, MD
P.O. Box 71
Tracys Landing, MD 20779
Phone: (410) 707-5008
At The Attachment Place we offer a program that includes parent coaching/mentoring, short and long term respite care, in-home services, tools, techniques, and guidance that will help you provide the type of home environment required for your child to heal.
We can assist in finding an attachment therapist and educating teachers, therapists, friends, and family members about the difficult challenges of parenting an unattached child
Children And Youth With Special Health Care Needs Resource Locator
4815 Seton Drive
Phone: (410) 358-6400
Chimes International, Ltd. and Subsidiaries, known as the Chimes Family of Services, offer a wide range of opportunities for people with disabilities and other special needs. Chimes International as the parent organization, leads and supports our subsidiaries, which provide services to over 19,000 people in 6 states, the District of Columbia and Israel.
Susan Perkins-Parks, Ph.D.,
Director, Behavior Management Clinic, Kennedy-Krieger Institute
Phone: (443) 923-7472
Patricia Shepley, MSW, LCSW-C
Sheppard Pratt Neuropsychiatry Program
6501 N. Charles St
Baltimore, Md. 21285
Children and Adults with Attention Deficit Disorders – C.H.A.D.D.
8181 Professional Place
Landover, MD 20785
Phone: (301) 306-7070
Toll Free: (800) 233-4050
Fax: (301) 306-7090
Attention Deficit Hyperactivity Disorder is often diagnosed in children and adults with FAS/FAE. Local CHADD support groups are available in most states.
Maryland Department of Health and Mental Hygiene – Maryland FASD Coalition
201 West Preston Street Room 317
Baltimore, MD 21202
Mary Price, Maryland FASD State Coordinator
Phone: (410) 767-5581
March of Dimes – Maryland Chapter
175 West Ostend Street, Suite C-2
Baltimore, MD 21230
Phone: (410) 752-7990
Fax: (410) 547-2521
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy.
The Arc of Maryland
49 Old Solomons Island Rd
Annapolis, MD 21401
Phone: (410) 571-9320
Fax: (410) 974-6021
Disability Rights Maryland
1500 Union Avenue
Baltimore, MD 21211
Phone: (410) 727-6352, ext.0
Toll Free: (800) 233-7201
Protection and advocacy agency for persons with developmental disabilities.
Sandler Law LLC
27 West Jefferson Street, Rockville, Maryland 20850
Phone: (301) 610-9797
Rene is available to assist in any Maryland criminal matter should the need arise or talk through any FASD issues.
NOFAS DC and Maryland FASD Family Support Group
Quarterly Meetings held at:
Holy Cross Hospital
1500 Forest Glen Road
Silver Spring, MD
Contact: NOFAS; Kathy Mitchell
The National Organization on Fetal Alcohol Syndrome sponsors a free family support group meeting for anyone who has been affected by FASD. Call (202) 785-4585.
FASD Parents Advocacy and Support, MD/DC/VA
Grassroots association of concerned parents, meeting monthly in two locations — the Maryland suburbs (for the DC Metro Area & Northern Virginia), and in Baltimore.
The group was founded by Nadia Carrell. Nadia Carrell is the overall point of contact as well as the primary point of contact for the DC Metro Area & Northern VA, (301) 404-7783, e-mail — firstname.lastname@example.org.
Baltimore Metro Area point of contact is Cathy Allen, (301) 807-4089, e-mail — email@example.com.
Cathy Allen, Parent
Phone: (301) 807-4089
She is a parent advocate. She has an adopted son that she knew was born from a mother who was an alcoholic. She has been through the challenges of the school system, and through the counselors and doctors who didn’t understand FASD and treated her son for ADHD until she found Kennedy Kreiger. Her son has ARND, so he is not visually identifiable with the facial featurs that mark many of the kids with full FAS.
The Arc Northern Chesapeake Region
4513 Old Philadelphia Road
Aberdeen, MD 21001
Phone: (410) 836-7177, ext. 347
Toll Free: (888) 836-7177
The Arc Northern Chesapeake Region is a private non-profit membership organization, which provides support services and advocacy to people with developmental disabilities and their families.
Reproductive Toxicology Center
7752 Woodmont Avenue
Bethesda, MD 20814
Contact: Anthony Scialli
Phone: (703) 203-6040
Provides information on teratogens world-wide.
Greater Washington Maternal-Fetal Medicine and Genetics
9707 Medical Center Drive
Rockville, MD 20850
Phone: (301) 279-6060
Fax: (301) 279-6345
Contact: Thomas Pinckert
By using state-of-the-art ultrasound and diagnostic tests, our team evaluates your health and the health of your baby before delivery. We then work closely with you, your family and your health care professionals to develop a care plan to manage any problems identified.
Addiction Treatment for Pregnant Women:
Johns Hopkins Bayview Medical Center Center for Addiction and Pregnancy
4940 Eastern Avenue
Baltimore, MD 21224
Phone: (410) 550-3020
Fax: (410) 550-3027
Contact: Robert Brooner, Director
A one-stop treatment program for substance abusing women and their families, providing care for the affected pregnant woman, her baby, and for her other children as indicated.
Maryland Department of Health and Mental Hygiene – Behavioral Health Administration:
Phone: (410) 402-8300
Vocational Rehabilitation Building:
Center 4 Clean Start
1001 Lake Street
Salisbury, MD 21801
Contact: Janice Lloyd-Condon
Contact: Phyllis Richardson
Phone: (410) 742-3460
Substance-abuse treatment (outpatient) for pregnant and post-partum women with their young children. The Center presents occasional trainings on FAS/FAE.
Mountain Manor Treatment Center
Safe Harbor Women and Children’s Program
Phone: 301-447-2361 or 1-800-537-3422
Avery Road Treatment Center (ARTC) Halfway House for Women and Children
Phone: (301) 762-5613
Phone: (410) 974-6829
Johns Hopkins Hospital Comprehensive
Phone: (410) 955-5212
Second Genesis, Residential T.C.
Phone: (301) 621-9013
Phone: (410) 876-1989
SAMHSA Behavioral Health Treatment Services Locator:
National Clearinghouse for Alcohol and Drug Information
P O Box 2345
Rockville, MD 20847-2345
Phone: (301) 468-2600
Toll Free: (800) 729-6686
SAMHSA’s National Clearinghouse for Alcohol and Drug Information (NCADI) is the Nation’s one-stop resource for information about substance abuse prevention and addiction treatment. NCADI distributes publications on prevention, intervention, and treatment of alcohol, tobacco, and other drug abuse including materials are available on FAS/FAE/ARND. NCADI also provides referrals to addiction treatment centers. They are available 24 hours a day, 7 days a week.