NOFAS Affiliates
NOFAS Affiliate: SoCal NOFAS (NOFAS Southern California)
8401 El Paso Street
La Mesa, CA 91942
Contact: Peggy Combs-Way, President
Phone: (619) 865-4991
Email: pcombsway@gmail.com
www.socalnofas.org
SoCal NOFAS, the Southern California state affiliate of NOFAS, is dedicated to raising community awareness about fetal alcohol spectrum disorders (FASD). We offer support and resources to pregnant women as well as to families and individuals that have been affected by an FASD. We have partnered with UCSD and Rady Children’s Hospital to offer training, resources, and referrals to families in the Southern California region. We also offer a monthly parent support group in San Diego.
NOFAS Affiliate: Beginnings of San Luis Obispo County (California)
PO Box 16036
San Luis Obispo, CA 93406
Phone: (805) 543-6216
Contact: Mary Thielscher
Email: info@beginningsofslo.org, mtilsh@sbcglobal.net
www.beginingsofslo.org/
NOFAS Affiliate: Healthy Native Nation at Indian Health Council
C/O NARCH Grant at Indian Health Council, Inc.
50100 Golsh Road
Pauma Valley, CA 92061
Phone: (760) 751-6055
Contact: Anika Montag
Email: amontag@indianhealth.com
Parent Groups
Peggy Black, Parent
Hercules, CA (Bay Area)
Contact Peggy Black
Phone: (925) 588-9737
Email: peggy.black0311@icloud.com
Educational advocate for the schools/IEP’s, a speech and language pathologist, parent liaison, and trainer.
Amber Soto, Parent
Northern California
Email: ambers@familysoup.org
Debra McFarren, Parent and Professional
CA
Contact: Debra McFarren
Email: kidzmom3@aol.com
Diane Kerchner, Educational Therapist and Parent
1525 Avenida Loma Vista
San Dimas, CA 91773
Contact: Diane Kerchner
Email: brokengooding@gmail.com, FAS-CA@yahoogroups.com
Moderator for online support group of California
Juan and DeeDee Ortiz, Parents
2536 North Avenue
Chico, CA 95973
Phone: (530) 893-1255
Contact: Juan and DeeDee Ortiz
Linda Hargreaves, Parent
CA
Phone: (510) 733-5376
Contact: Linda Hargreaves
Email: hargrlin@aol.com
Margaret Ruby, Parent
CA
Contact: Margaret Ruby
Email: ruby706@sbcglobal.net
In Monterrey County, California.
Parent to Parent Group
4761 Jessie Avenue
LaMesa, CA 91941
Contact: Lynn Belke
Paulette Benson, Teacher and Parent
CA
Phone: (626) 836-8680
Contact: Paulette Benson
Email: la.townhall@verizon.com
Rialto Support Group
1607 West Townsend St.
Rialto, CA 92377-3857
Phone: (909) 350-4895
Contact: Tammy DeHesa, Organizer
Email: DeHesaEight@HotMail.com
A support group for foster and adoptive parents of drug-and alcohol-exposed children, regardless of lack of current diagnosis. Come connect with others who share your experience. Learn more effective ways to help your children and obtain information in the community. We meet the third Tuesday of each month from 7 – 8:30 pm. Please call for more information.
Diagnosis of FASD
Cedars Sinai Medical Center – Medical Genetics/Birth Defects Center
8700 Beverly Blvd Pact
Suite 400
Los Angeles, CA 90048
Phone: (310) 423 – 9914
Toll Free: 800-233-2771
Contact: John Graham
Email: john.graham@cshs.org
Dr. Graham’s background in public health, communication disorders, developmental pediatrics and dysmorphology has helped to branch his research into a wide variety of medical conditions that lead to developmental disabilities. He also has a research interests in various teratologic disorders and craniofacial disorders, such as craniosynostosis, plagiocephaly, cleft lip and palate, hemifacial microsomia and microtia. He also, diagnoses FAS. Additional research interests include the genetics of mental retardation and common birth defect syndromes. He has written well over 200 peer-reviewed scientific articles and book chapters and recently revised his book, Smith’s Recognizable Patterns of Human Deformation.
San Diego State University – Center for Behavioral Teratology
6330 Alvarado Court Suite 100
San Diego CA 92120
Phone: (619) 594-7228
Fax: (619) 594-1895
Contact: Sarah Mattson, Ph.D., Project Coordinator
Email: sarah.mattson@sdsu.edu
Contact: Amy Flink, Project Coordinator
Phone: (619) 594-1228
www.psychology.sdsu.edu/new-web/facultystaff/mattson.html
The Center for Behavioral Teratology is a University-recognized research center focused on the effects of prenatal exposure to alcohol and other developmental disabilities. They are particularly interested in the neurobehavioral profile of fetal alcohol spectrum disorders. Both neuropsychological and neuroimaging studies are being conducted.
Santa Teresa Medical Center, Department of Genetics
5755 Cottle Road
Building 1
San Jose, CA 95123
Phone: (408) 972-3300
Fax: (408) 972-3298
Contact: David Witt, MD
www.permanente.net/homepage/kaiser/pages/c6139-top.html
UCLA Fetal Alcohol Syndrome and Related Disorders Clinic
760 Westwood Plaza
68-265A Semel Institute
Los Angeles, CA 90095
Phone: (310) 206-6528
Toll Free: 1-800-825-9989
Fax: (310) 206-4446
Contact: Mary O’Connor, Ph.D.
Email: moconnor@mednet.ucla.edu
www.semel.ucla.edu/fas
UCSD Department of Pediatrics
Division of Dysmorphology
3020 Children’s Way, MC 5109
San Diego, CA 92123-5109
Phone: (619) 543-2040
Fax: (619) 543-2066
Contact: Kenneth Lyons Jones, MD
Email: klyons@ucsd.edu
The medical service program of the Division of Dysmorphology, University of California, San Diego, is a multifaceted program aimed at evaluation of children with birth defects; follow-up with respect to their chronic care; genetic and teratogenetic counseling for parents; and community education programs regarding birth defects.
UCSF Biochemical Genetics Service
P O Box 0706
533 Parnassus Ave. Rm 4108A
San Francisco, CA 94143-0706
Phone: (415) 476-2871
Fax: (415) 476-9976
Contact: Seymour Packman, MD
Email: pack@itsa.ucsf.edu
Valley Children’s Hospital
Department of Medical Genetics/Metabolism
9300 Valley Children’s Place
Madera, CA 93636
Phone: (559) 353-6400
Contact: Susan Winter, Geneticist
www.childrenscentralcal.org/Specialties.asp?id=488
The Department of Genetic Medicine and Metabolism offers both diagnostic and follow-up services.
Fetal Alcohol Spectrum Disorders Clinic
1721Griffin Avenue
Los Angeles, California 90031
Contact: Dr. Lyn Laboriel
Phone: (323) 221-4134
www.violenceinterventionprogram.org/
Fetal Alcohol Spectrum Disorders Clinic. Our clinic space is shared with Violence Intervention Program and is also shared with our clinics for care of foster care children and neurology. We partner here with mental health services, social workers and lawyers from Children’s Alliance to meet all the needs of our FAS children. Dr. Lyn Laboriel is a pediatrician and one of the leading experts on FASD. We have a full clinic where we diagnosis FASD daily and follow up children with FASD to make sure their educational and mental health needs are being met.
Prevention Programs, including Treatment for Women
Alameda County Medical Center
1411 East 31st Street
Oakland, CA 94602
Phone: (510) 437-5192
www.acmedctr.org/
The mission of the Substance Abuse Department is to improve the social functioning and the health of individuals in the community that suffer from the debilitating effects of drugs and alcohol. The department provides substance abuse treatment services, case management, childcare, acupuncture, mental health services, and inpatient screenin.
BabyCal
California Department of Health
714 P Street, Room 1650
Sacramento, CA 95814
Phone: (916) 657-3719
Toll Free: (800) 222-9999
Fax: (916) 657-3224
BabyCal is a statewide education and outreach program to encourage women to seek early prenatal care. The number listed above is available 24 hours a day, 7 days a week.
California Department of Alcohol and Drug Programs
1700 K Street
Sacramento, CA 95811
Phone: (916) 323-4445
Fax: (916) 445-0846
www.adp.ca.gov/
Perinatal treatment services in California continue to grow and currently serve over 37,000 women and 56,000 children annually. In May 2007, Director Rene Zito announced an expansion of the previous Office of Perinatal Substance Abuse (OPSA) with the establishment of the Office of Women’s and Perinatal Services (OWPS). Ms. Zito explained that OWPS marks “the beginning of many enhancements to improve alcohol and other drug (AOD) services for women of all ages, their children, and their families.”
Families First
4076 Third Ave., Suite 301
San Diego, CA 92103
Phone: (619) 543-8089
Contact: Stephen A. Spector, M.D., Project Director
Email: saspector@ucsd.edu
www.ucsdmcap.org
The project coordinates integrated medical and mental health, family-based early substance abuse prevention, early intervention, child and family mental health counseling, and home-based parenting skills training. The services are provided to HIV positive, substance abusing women who are of childbearing age and/or pregnant; perinatally exposed (HIV and dangerous drug) infants and young children; and their biological families, including older siblings throughout San Diego county.
Family Link “Plus” Program
135 Paul Drive
San Rafael, CA 94903
Phone: (415)492-4444
Contact: Sushma Taylor, Project Director
Email: staylor@cpinc.org
www.cpinc.org
The agency’s mission is to provide comprehensive social, educational, vocational, medical, psychological, housing, and rehabilitation services to combat social problems such as substance abuse, poverty, unemployment, and homelessness. CPI offers rehabilitation and treatment services that interrupt the abusive cycles of psychological, social, and economic dislocation by providing critical training and support so individuals and families can claim self-worth and dignity.
Primeros Pasos
195 Harvey West Boulevard
Santa Cruz, CA 95060
Phone: (831) 423-2003, ext. 105
Contact: Will O’Sullivan, Project Director
Email: will.osullivan@scccc.org
www.scccc.org/community-recovery-services/community-recovery-services
The focus of the program is prevention of placement of children into the child welfare system due to abuse or neglect stemming from parental drug or alcohol abuse.The emphasis of Primeros Pasos is on engaging young Latina mothers in drug abuse treatment and providing wrap-around services for the entire family. Services include quality early education in and out of the home; parent education, including parent-child activities; and comprehensive health services, including services to women after birth.
Resources for Pregnant Women
CA
www.beginningsofslo.org/?page_id=694
SLO County Drug and Alcohol Services provides residential services and counseling to women who are pregnant and/or parenting and need support to stay sober.
Resources for Substance Abuse Prevention in Women
CA
www.beginningsofslo.org/seek/need-help-2/
Providing information, emotional and practical support to pregnant teen and adult women, babies and their families in their first year after birth.All services FREE: pregnancy testing, educational counseling, infant developmental assessments, rental deposit assistance and practical help with Maternity Clothing, Infant Clothing, Emergency supply of diapers and formula, and a variety of donated supplies.
Treatment Services for Affected Individuals
California Early Start
1600 9th Street
Room 330
Sacramento, CA 94244-2020
Phone: (916) 654-1593
Toll Free: (800) 515-BABY
Fax: (916) 654-3255
Contact: Mary Lou Hickman
www.dds.ca.gov/EarlyStart/home.cfm
Early Start is Californias system of early intervention services provided to infants and toddlers with disabilities and their families. It is a multiagency effort by the Department of Developmental Services and the California Department of Education that encourages partnerships between families and professionals, family support, and coordination of services. The statewide system of early intervention services is available throughout California and can be accessed through regional centers for developmental disabilities, county offices of education, local school districts, health or social service agencies, and family resource centers/networks in your community.
Native American Health Center
2950 International Blvd
Oakland, CA 94601
Phone: (510) 535-4400
www.nativehealth.org/
Native American Health Center assists American Indians and Alaska Natives to improve and maintain their physical, mental, emotional, social and spiritual well-being with respect for cultural traditions and to advocate for the needs of all Native American people.
Pasadena Child Development Associates
620 North Lake Avenue
Pasadena, CA 91101
Phone: (626) 793-7350
Fax: (626) 793-7341
www.pcdateam.org/
Pasadena Child Development Associates is a private child development group practice serving children from birth to 12 years of age, and families, when there is any concern regarding development or behavior. This comprehensive group of child specialists provide evaluation, consultation and intervention services, as a multi-disciplinary team.
Patricia Wilbarger, O.T.
642 Island View Drive
Santa Barbara, CA 93109
Phone: (805) 962-8233
Contact: Patricia Wilbarger
Email: pwilbar@verizon.net
Occupational therapist and clinical psychologist who is an expert on sensory integration.
Community Support
UCLA Ties for Adoption
1000 Veteran Avenue
Suite 850
Los Angeles, CA 90095
Phone: (310) 825-6110
Contact: Dorli Burge, Susan Edelstein
www.tiesforadoption.ucla.edu/
TIES for Adoption promotes the successful adoption, growth, and development of children with special needs – including those with prenatal substance exposure who are in foster care. TIES for Adoption significantly reduces the barriers to the adoption of these children, and helps to support their successful transition into their new permanent homes. Services are available to adoptive families of children under nine years of age who are placed and referred by the Los Angeles County Department of Children and Family Services.
FASD Northern California – FASD NorCal
Contact: Dr. Kathryn Page
Phone: (707) 996-7846
Email: kathryn.page@sbcglobal.net
www.fasdnorcal.org
FASD NorCal is a newly-forming group of parents and professionals aiming to foster diagnosis, services and support for everyone affected by fetal alcohol damage in Northern California.
Family Soup
1650 Sierra Ave. Suite 106
Yuba City, CA. 95993
Phone: (530) 751-1925
www.fasdnorcal.org
Family resource center dedicated to supporting, encouraging and providing information and facilitated referral to families with children with special needs. They offer a variety of programs for parents/caregivers and children.
Statewide Services
California FASD Coordinator
1700 K Street
Sacramento, CA 95811-4037
Phone: (916) 322-0495
Fax: (916) 324-4886
Contact: Tara Torrant, Supervisor
Email: tara.torrant@adp.ca.gov
March of Dimes – California Chapter
101 Montgomery Street, Suite 300
San Francisco, CA 94104
Phone: (415) 788-2202
Fax: (415) 788-2802
www.marchofdimes.com/california/
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy
The Arc of California
1225 8th Street, Suite 350
Sacramento, CA 95814
Phone: (916) 552-6619
Fax: (916) 441-3494
Email: tony@thearcca.org
www.thearcca.org/
Western FASD Regional Training Center, University of California, Los Angeles
Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles
760 Westwood Plaza, Room 48-240
Los Angeles, CA 90024
Phone: (310) 825-5213
Contact: Margaret Stuber, MD
Email: mstuber@mednet.ucla.edu
www.semel.ucla.edu/fas/
The WRTC for FASDs seeks to reduce the incidence of alcohol-exposed pregnancies and to increase the availability and quality of services for individuals affected by Fetal Alcohol Spectrum Disorders and their families through improved education and training of medical and other health students and professionals.
Other
California Birth Defects Monitoring Program
1917 Fifth Street
Berkeley, CA 94710
Phone: (510) 549-4155
Email: info@cbdmp.org
www.cdph.ca.gov/programs/cbdmp/Pages/default.aspx
The California Birth Defects Monitoring Program (CBDMP) collects and analyzes data to identify opportunities for preventing birth defects and improving the health of babies.
CTIS Pregnancy Risk Information Line
Dysmorphology and Teratology Division
UCSD Department of Pediatrics
Toll Free: (800) 532-3749
www.ctispregnancy.org/
The Hotline offers free information over the telephone to pregnant women, their partners and health care providers in California. Callers can receive written information and appropriate referrals for potentially “at risk” pregnancies.
Disability Rights California
1831 K Street
Sacramento, CA 95811
Phone: (916) 504-5800
Toll Free: (800) 776-5746
Fax: (916) 504-5802
Email: legalmail@pai-ca.org
www.disabilityrightsca.org/
Protection and advocacy agency for persons with developmental disabilities. Offices are located in every region of the state.
Western Regional Training Center on FASD
3945 E. Whittier Blvd.
Los Angeles, CA 90023
Phone: (323) 307-0443
Fax: (323) 307-0467
Contact: Maria Correa, CHOICES Program Coordinator
Email: mcorrea@altamed.org
Dr. Teddy King
18182 US Highway 18, Suite 101
Apple Valley, California 92307
Phone: (760) 242-3539
Dr. Kathryn Page, Ph.D.
Phone: (707) 996-7846
Email: kathryn.page@sbcglobal.net
American Indian Fetal Alcohol Education
8205 Wakefield Avenue
Panorama City, CA 91402
Phone: (626) 299-4503
Fax: (626) 458-6084
Contact: Danielle Glenn-Rivera
Email: danielleosageinla@msn.com
We provide classes on Fetal Alcohol Spectrum Disorders, specializing on the American Indian population.
Exceptional Family Resource Center
9245 Sky Park Court
Suite 130
San Diego, CA 92123
Phone: (619) 594-7394
Toll Free: (800) 281-8252
Fax: (858) 268-4275
Contact: Sherry Torok
Email: storok@projects.sdsu.edu
www.efrconline.org/
The Exceptional Family Resource Center (EFRC) is a community-based collaborative agency, staffed by parents and professionals. It is designed to serve families of individuals with special needs by providing a broad continuum of information, education, and support. Services and supports are offered in English and Spanish.
Fetal Alcohol Teamwork, Consultation and Training
Sonoma, CA
Phone: (707) 996-7847
Contact: Kathryn Wosser Page, Ph.D.
www.fatcat.vpweb.com
For parent support and advocacy, behavioral consultation and resources. Dr. Page has dedicated herself to the field of FASD for over ten years. Previously, she has been a Guidance and Assessment Consultant for the San Lorenzo School District; Clinical Director of Family Education Foundation, where she worked with at-risk youth and pregnant/parenting teens; and long-time advocate for people with disadvantages of all kinds.
Making a Difference Association
1001 North La Cadena Drive
Colton, CA 92324
Phone: (909) 420-0413
Fax: (909) 513-0410
Contact: Tina Squires, Executive Assistant
Email: makingadifference112@gmail.com
www.makingadifferenceassociation.org
Making A Difference Association provides a support group for foster and adoptive parents of drug-and alcohol-exposed children, regardless of lack of current diagnosis. Come connect with others who share your experience. Learn more effective ways to help your children and obtain information in the community. We meet on the second Thursday of each month. Please call for information.
Southern California FASD Information & Support Network
Contact: Valerie Lipow
Phone: (760) 730-1972 (home), (760) 845-1650 (mobile)
Email: vallipow@aol.com
www.sites.google.com/site/socalfasdnetwork/
A nonprofit, parent-led resource for parents, caregivers, advocates, educators and treatment professionals of persons who have been diagnosed with Fetal Alcohol Spectrum Disorder (FASD) or anyone who is suspected of being affected by FASD. Its services include a web site, an email discussion group, and a secure Facebook group. It also provides regular training workshops delivered throughout the southern part of the state, from the Central Coast and Inland Empire to the Mexican border.