The Passing of Stephen DeJoseph, FASD Advocate

It is with deep sadness that NOFAS report on the passing of Stephen DeJoseph, a dear and generous husband, son and brother, and an extraordinary FASD champion. Stephen died suddenly on June 7, 2016 of unexpected cardiac complications. He was only 27 years old.

Relatives and friend are invited to attend his Memorial on Saturday, June 18, 2016 from 4:00 to 7:00 PM at the Weber Funeral home: 112 Broad Street, Riverton, NJ 08077 (Telephone: 856-829-2700). Condolences may be sent to his family at 609 Walnut Street, Palmyra, NJ 08065. Stephen Paul DeJoseph Obituary

Stephen spoke around the country about living with FASD, and was a guest plenary speaker at the FASD Center for Excellence’s “Building FASD State Systems” meeting.

Stephen was incredibly bright, handsome, sweet and loving to all that were lucky enough to know him. He was a wonderful and supportive brother to Michael and Christina. His mother, Dr. Mary DeJoseph is a noted national speaker on FASD and a beloved member of the NOFAS Circle of Hope.

NOFAS applauds the advocacy of Dr. Paul DeJoseph and Christina DeJoseph and extends our deepest sympathies to the DeJoseph Family during this difficult time. The entire NOFAS community will remember our dear friend Stephen DeJoseph with great fondness and gratitude.

The family has set up a memorial fund in his name. Donations can be made to the Stephen DeJoseph Memorial Fund.

Contribute to the Stephen DeJoseph Memorial Fund

The Stephen DeJoseph Memorial Fund supports individuals living with FASD and helps them share their stories of success.


The DeJoseph family wrote the following tribute: In Honor of Stephen P. DeJoseph

“Our gentle crusader Stephen passed away June 7, 2016 after a brief hospital stay. He spent his 27 years here loving, learning, teaching and exploring life. Stephen married his soulmate Alicia Lombardo in 2013. They created a powerful life of creativity and generosity.

As his family, we were constantly amazed by Stephen’s zest for life and his unique way of putting a positive spin on whatever life presented him. His biggest hero was his younger brother Mike. Stephen had a brilliant mind and an ardent passion for curiosity and innovation, all wrapped up by a heart that loved with no limits.

Stephen was steadfast about his dream to connect people through toys, comics and collectibles. He was also passionate about preventing prenatal alcohol use and supporting individuals with prenatal alcohol exposure. We intend to carry on the work he started.

“There are some who bring a light so great to the world that even after they are gone the light remains” (Unknown Author)

Video Interview

Watch this video of Stephen DeJoseph speaking to NOFAS about the daily challenges of being affected by FASD and his strategies for success.


The DeJoseph family provided the following photos.  Click on each photo to view larger.