State Resources for Wisconsin

FEN-North
2 Royalton Road
Superior, WI 54880
Phone: 715-394-6909
Contact: Judith Walker PhD, RN
walkerjr_1@charter.net
Provides education, resources and referrals.

Kathy Kidd-Wuest
3409 Kipling Drive
Madison, WI 53704-2461
Phone: 608-241-3074 Fax: 608-241-2663
kathykiddwuest@msn.com
Legal advocate in Wisconsin.

Post-Adoption Online Support Group
WI
Contact: Sandy Yaroch
post_adopt@hotmail.com
groups.yahoo.com/group/post- adopt
The Post-Adoption Online Support Group is an invitation-only group that provides online information, referrals, and support to adoptive, foster, and birth families who have children with FASD and other challenging behaviors. Email for more information or to request permission to join the group.

Diagnosis of FASD

Appleton Clinical Genetics Center
Appleton, WI
Phone: 920-831-1296
Contact: David Wargowski, MD; Greg Rice, MD

Children’s Hospital of Wisconsin Eau Claire Center
2116 Craig Road
Eau Claire, WI 54701
Phone: 715-221-7400 Toll Free: 877-216-8535
Contact: Elizabeth McPherson, MD, FACMG

Children’s Hospital of Wisconsin Genetics Center
PO Box 1997
9000 W. Wisconsin Avenue
Milwaukee, WI 53226
Phone: 414-266-3347
Contact: William Rhead, MD, PhD; David Bick, MD; Esperanza Font-Montgomery, MD; Dave Dimmock, MD

Green Bay Clinical Genetics Center
Green Bay, WI
Phone: 920-433-8559
Contact: David Wargowski, MD; Greg Rice, MD

Gundersen Lutheran Medical Center
1900 South Avenue
La Crosse, WI 54601
Phone: 608-775-6766 Toll Free: 800-362-9567
Contact: Kerry Baldwin Jedele, MD

MaMaawi (Together for Children) Red Cliff Developmental Assessment Clinic
88455 Pike Road
Bayfield, WI 54814
Phone: 715-779-3707
Contact: Grace Heitsch, MD
This program only serves Red Cliff Tribal members.

Marshfield Clinic, Genetic & Birth Defects Clinic
1000 N Oak Avenue
Marshfield, WI
Phone: 715-221-7400 Toll Free: 877-216-8535
Contact: Elizabeth McPherson, MD, FACMG

Marshfield Clinic, Minocqua Center
9601 Townline Road
Minocqua, WI 54548
Phone: 715-221-7400 Toll Free: 877-216-8535
Contact: Elizabeth McPherson, MD, FACMG

Rhinelander Clinical Genetics Center
Rhinelander, WI
Phone: 608-262-2507
Contact: David Wargowski, MD; Greg Rice, MD

University of Wisconsin – Madison Clinical Genetics Center
Waisman Center
1500 Highland Avenue
Madison, WI 53705
Phone: 608-262-2507
Contact: David Wargowski, MD; Greg Rice, MD
States served include Wisconsin, Michigan, Minnesota, Iowa.

Prevention Programs, including Treatment for Women

My Baby and Me Program
Wisconsin Womens Health Foundation
2503 Todd Drive
Madison, WI 53713
Phone: 608-251-1675 Fax: 608-251-4136
Contact: Hillary Whitehorse, Program Manager
hwhitehorse@wwhf.org
www.wwhf.org/
My Baby and Me is a program to help pregnant women stay alcohol-free, and is a partnership between the Wisconsin Department of Health Services (DHS) and the Wisconsin Women’s Health Foundation (WWHF). The goal of the program is to increase the number of women who do not drink alcohol during pregnancy by using a strength-based motivational intervention for behavior change and enhancing prenatal care coordination services.

Substance Affected Families in Recovery
www.metahouse.org
2625 N. Weil St.
Milwaukee, WI 53212
Phone: (414) 962-1200
Project Director: Christine Ullstrup cullstrup@metahouse.org
The goal is to prevent, and thereby break, the intergenerational cycle of substance abuse, teen pregnancy and family violence; to preserve and strengthen the family unit; to prevent out-of-home placement for the children and, as appropriate, to reunify children currently in foster care with their mother. Meta House programs provide a continuum of care that includes outpatient, intensive outpatient, day treatment and residential substance abuse treatment.

Treatment Services for Affected Individuals

Children and Youth With Special Healthcare Needs Program
Phone: (608) 266-8178 Fax: (608) 267-3824
The Children and Youth with Special Health Care Needs Program collaborates with national, state and community-based partners to link children to appropriate services, close service gaps, reduce duplication and develop policies to better serve families.

Post Adoptive Resource Project – PARP
9444 W Mineral Point Road
Mt. Horeb, WI 53572
Phone: 608-437-3544 Fax: 608-437-4890
Contact: Jeanne Zoromski, Parent and Coordinator
www.geocities.com/Heartland/Prairie/4786
PARP serves all regions of Wisconson with information, and referrals for families of children with drug/alcohol-related birth disabilities. PARP can provide respite subsidies to adoptive families in southern Wisconsin who have children with special needs.

Community Support

Disability Rights Wisconsin (DRW)
16 North Carroll Street, Suite 400
Madison, WI 53703
Phone: 608-267-0214 Toll Free: 800-928-8778
www.w-c-a.org
DRW provides protection and advocacy for people with disabilities throughout the state. They are completely independent of state government and direct service providers.

Research and Advocacy

Wisconsin Council on Children and Families
16 North Carroll Street, Suite 600
Madison, WI 53703
Phone: 608-284-0580
www.wccf.org
The Wisconsin Council on Children and Families, Inc. is a nonprofit, multi-issue child and family advocacy agency. The Councils mission is to promote the well-being of children and families in Wisconsin by advocating for effective and efficient health, education, and human service delivery systems.

Statewide Services

Family Empowerment Network (NOFAS Wisconsin)
University of Wisconsin School of Medicine and Public Health, Department of Family Medicine
1100 Delapaine Court
Madison, WI 53715
Phone: 608-262-6590 Fax: 608-263-5813 Toll Free: 800-462-5254
Contact: Raina Haralampopoulos
fen@fammed.wisc.edu
www.pregnancyandalcohol.org
FEN is a resource, referral, support, and research program serving families affected by fetal alcohol spectrum disorders (FASD) and the providers who serve them.

Genetics in Wisconsin: Resources for Families and Professionals
www.slh.wisc.edu/genetics/
The Wisconsin Statewide Genetics webpage was created to give families and healthcare providers access to genetic information, screening, and education. The webpage was developed as part of the Wisconsin Genetic Service Plan. The website features links to many other websites that may be helpful to families and professionals. The family stories are an especially important part of the website as they give a face to those in the state who benefit from genetic services.

Great Lakes FASD Regional Training Center, University of Wisconsin School of Medicine and Public Health
Department of Family Medicine
1100 Delaplaine Court
Madison, WI 53715
Phone: (608) 261-1419 Fax: (608) 263-5813
Contact: Georgiana Wilton, PhD
georgiana.wilton@fammed.wisc.edu
www.fasdeducation.org
The Great Lakes FASD Regional Training Center (GLFRTC) addresses this identified need by providing training for medical and allied health professionals and students throughout the Great Lakes region and beyond on the prevention, identification, and treatment (management) of fetal alcohol spectrum disorders (FASD). The project is funded by the Centers for Disease Control and Prevention (CDC) and housed at the University of Wisconsin-Madison, School of Medicine and Public Health. The project targets the states of Hawaii, Indiana, Minnesota, North Carolina, Michigan, Ohio, and Wisconsin.

March of Dimes
5225 North Ironwood Road
Suite 100
Milwaukee, WI 53217
Phone: (414) 778-3500 Fax: (414) 778-3503
www.marchofdimes.com/wisconsin/
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy.

The Arc-Wisconsin
2800 Royal Avenue, Suite 209
Monona, WI 53713
Phone: 608-222-8907 Fax: 608-222-8908 Toll Free: 877-272-8400
arcw@att.net
www.arc-wisconsin.org
The Arc-Wisconsin provides a variety of assistance to people with developmental disabilities and their families including advocacy and public policy development, training and information, and guardianship services.

Wisconsin Family Ties
16 North Carroll Street
Suite 230
Madison, WI 53703
Phone: 608-267-6888 Toll Free: 800-422-7145
info@wifamilyties.org
www.wifamilyties.org
Wisconsin Family Ties is a statewide non-profit organization, run by families for families who have children with emotional, behavioral, and mental disorders. The group provides information, education, referrals, and support including family advocates and support groups.

Wisconsin FASD Treatment Outreach Project (WTOP)
University of Wisconsin Department of Family Medicine
1100 Delaplaine Court
Madison, WI 53715
Phone: 608-262-6590 Toll Free: 800-462-5254
Contact: Raina Haralampopoulos
raina.zwadzich@fammed.wisc.edu
www.pregnancyandalcohol.org
The Wisconsin FASD Treatment Outreach Project (WTOP) provides training and consultation on fetal alcohol spectrum disorders (FASD), clinical assessment of women and children at risk, and support to professionals to work with individuals with FASDs.

Wisconsin State FASD Coordinator
Division of Mental Health and Substance Abuse, Bureau of Prevention, Treatment, and Recovery
1 West Wilson Street, Rm 850
Madison, WI 53703
Phone: 608-261-0651
Contact: Bernestine Jeffers
bernestine.jeffers@wisconsin.gov

Substance Abuse Treatment Services

St. Croix Tribal Clinic
24663 Angeline Avenue
Webster, WI 54893
Phone: 715-349-8554, ext. 5150

Wisconsin Department of Health Services, Division of Mental Health and Substance Abuse Services
1 West Wilson Street
Madison, WI 53702
Phone: 608-261-0651
Contact: Bernestine Jeffers, Womens Alcohol and Other Drug Abuse (AODA) Treatment Coordinator
bernestine.jeffers@dhs.wisconsin.gov