State Resources for New York

Center for Cognitive – Developmental Assessment and Remediation (BGCenter)
150 Airport Executive Park
Suite 152
Nanuet, NY 10954
Phone: 845-694-8496 Fax: 845-694-8497
Contact: Boris Gindis, Ph.D., Psychologist
gindis@bgcenter.com;
www.bgcenter.com
BGCenter specializes in treatment of the psychological, developmental and educational issues of internationally adopted children. We provide a range of psychological services individually and as a member of a team of medical doctors, psychotherapists, counselors and legal professionals participating in the “FASD Children at School” project. In addition, Dr. Boris Gindis with the extensive experience of establishing a differential diagnosis of FASD condition in children, provides in-depth developmental, psychological, and educational assessments and develops remedial programming for children of pre-school and school age, suspected of having FASD.

Chautauqua Alcoholism and Substance Abuse Council
2-6 East 2nd Street
Fenton Building, Suite 405
Jamestown, NY 14701
Phone: 716-664-3608
info@casacweb.org
www.casacweb.org
ProvideS education, screening, information and referral to individuals as well as education and training for professionals.

Cindy Whitcomb
245 East Main Street
Victor, NY 14564
Phone: 585-924-2444
tctwhit@juno.com

Dianne O’Connor
Capital District, NY
Phone: 518-376-1546
doconno2@nycap.rr.com
I am the parent of six children with varying degrees of FASD. I have dealt with systems of care to get needed services for my children from infancy to young adults.

Erie County Council for the Prevention of Alcohol & Substance Abuse (ECCPASA)
Western NY Family Support Group
1625 Hertel Avenue
Buffalo, NY 14216
Phone: 716-831-2298 Fax: 716-831-9580
Contact: Helen Weinstein, Fetal Alcohol and Drug Effects Program Coordinator
helenw@eccpasa.info
www.eccpasa.org/fade
Pilot agency for SAMHSAs Partnership to Prevent FASD. The FADE Program offers a positive approach to meeting the challenges of prenatal exposure to alcohol and other drugs through prevention, intervention, and support services. FASD training for schools, health and human service providers, and community groups is available. The FADE Program Coordinator facilitates the WNY FASD Family Support Network, providing monthly meetings, school support services, and referrals.

Evan B. Donaldson Adoption Institute
525 Broadway
New York City, NY 10012
Phone: 212-925-4089
Contact: Madelyn Freundlich, Director
apertman@adoptioninstitute.org
www.adoptioninstitute.org
Specializes in training professionals in the adoption field; the training includes problems families may experience with alcohol-exposed children.

International Pediatric Health Services, PLLC
151 East 62nd St.
Suite 1A
New York, NY 10021
Phone: 212-207-6666 Fax: 212-207-6665
Contact: Jane Aronson, D.O., Director
orphandoctor@aol.com
www.orphandoctor.com
Helps families with aspects of international adoption including adopting patients with alcohol related neurodevelopmental disorders.

Lois Porlier
PO Box 275
East Berne, NY 12059
Phone: 518-872-9061
lporlier@aol.com

March of Dimes- Greater NY Chapter
515 Madison Avenue
20th Floor
New York, NY 10022
Phone: (212) 353-8353 Fax: (212) 475-3076
www.marchofdimes.com/newyork/
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy.

March of Dimes-Upstate NY Chapter
435 Lawrence Bell Drive #9
Buffalo, NY 14221
Phone: (716) 691-3805 Fax: (716) 691-0240
www.marchofdimes.com/newyork/
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy.

NOFAS Upstate NY
DePaul’s National Council on Alcoholism and Drug Dependence-Rochester Area
1931 Buffalo Road
Rochester, NY 14624
Phone: (585) 719-3480 Fax: (585) 423-1908
Contact: Jennifer Faringer, MS.Ed., CPP, Director
jfaringer@depaul.org
www.ncadd-ra.org
NCADD-RA provides education, information, support and referral for families and community members as well as professional education on a wide variety of addiction related topics to include FASD. NCADD-RA hosts a FASD parent networking and support group. Staff work to positively influence the social norms that perpetuate and normalize the use of alcohol by pregnant women through comprehensive community awareness campaigns entitled A Pregnant Woman Never Drinks Alone.

NYSARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
Phone: 518-439-8311 Fax: 518-439-1893
www.nysarc.org
A family-based organization working with and for people who have mental retardation or other developmental disablities.
Post-Adoption Resource Center of the Capital Region

Parsons Child & Family Center
60 Academy Road
Albany, NY 12208
Phone: 518-426-2888 Fax: 518-447-5234
www.parsonscenter.org
Provides post-adoption services as well as FASD support groups for families.

Pregnancy Risk Network
The Ferre Institute
124 Front Street
Binghamton, NY 13905
Toll Free: 800-724-2454
info@pregnancyrisknetwork.org
www.pregnancyrisknetwork.org/
Exposures in Pregnancy and Breast Feeding: Answers for women and health care providers. Prescription drugs, over the counter drugs, alcohol, illicit drugs, and occupational hazards can all have an impact on pregnancy and the developing fetus. At Pregnancy Risk Network (a free telephone information service), callers can get reliable information on specific questions about exposure in pregnancy.

Susan Rose
smrose49@aol.com (ATTN FASSN)
Susan is the Director of the Fetal Alcohol Syndrome Support Network of New York City and Long Island

The Advocacy Center
277 Alexander St. #500
Rochester, NY 14607
Phone: 585-546-1700 Toll Free: 1-800-650-4967
advocacy@frontiernet.net
www.advocacycenter.com
Provides training and assistance with problems.

The Children’s Advisory Group
155 West 72nd Street
Suite 201
New York, NY 10023
Phone: 212-769-4644 x103
Contact: Susan Lugar, CSW
Educational Consultants for Special Education Students – private.

The Fetal Alcohol Syndrome Support Network of NYC and Long Island
33-33 164 Street
Flushing, NY 11358
Phone: 718-886-4076
Contact: Susan Rose, President
Smrose49@aol.com; FASSN_2@yahoo.com
www.fassn.org/index.htm
NOFAS NYC/FASSN is a non-profit network that provides information to families and health professionals about resources that are available for individuals in New York City and Long Island who have Fetal Alcohol Syndrome Disorder (FASD). FASSN is active in raising public awareness of FAS through public, private, government agencies, and the media in NYC and L.I. For the past 12 years, FASSN has been working to build a network of resources that includes support and education towards prevention and intervention in all the Boroughs. FASSN now provides counseling to adoptive parents or caregivers who are raising children and teens who have FAS/D.

Diagnosis of FASD

Columbia-Presbyterian Medical Center
177 Fort Washington Avenue
Milstein 9 Garden N. Room 421
New York, NY 10032
Phone: 212-305-6731 Fax: 212-305-9058
Contact: Kwame Yebua, M.D., FAS Specialist
ka8@columbia.edu
Sees children only

Golisano Children’s Hospital at Strong
Department of Pediatrics
601 Elmwood Avenue, Box 777
Rochester, NY 14642
Phone: 585-275-7813 Fax: 585-275-3366
Contact: Sandra H Jee, MD, MPH
www.urmc.rochester.edu/gchas/INDEX.HTM

Long Island Jewish-Schneiders Children’s Hospital
400 Lakeville Road
Suite 260
New Hyde Park, NY 10040
Phone: 718-470-3510
Contact: Dr. Carmel Foley, Head, Division of Child Psychiatry & Adolescent Medicine
Medicaid accepted

Mid-Hudson Family Health Institute – Child Neurology & Neurogenetics Clinic
279 Main Street
Suite 102
New Paltz, NY 12561
Phone: 845-255-2930
Contact: Dr. Joseph Higgins

Montefiore Center for Congenital Disorders
Division of Genetics
3415 Bainbridge Avenue
Bronx, NY 10467
Phone: 718-741-2323
Contact: Robert Marion, M.D.; Paul Levy, M.D
plevy@montefiore.org
Note: These doctors see children, teens, and adults

New York State Lab of Newborn Screening and Genetics Services
Wadsworth Center, Room E-297B
Empire State Plaza
Albany, NY 12201-0509
Phone: 518-474-7148 Fax: 518-473-1733
Contact: Katharine B. Harris, New York State Genetics Coordinator
kbh02@health.state.ny.us
Staff can provide referral information to clinical genetics centers.

Regional Medical Genetics Center, Inc.
19 Bradhurst Avenue
PO Box 287
Hawthorne, NY 10532
Phone: 914-593-8900 Fax: 914-593-8938
Contact: Lawrence Shapiro, M.D.
Provides information on teratogens for clients and health professionals in the 7 counties of the lower Hudson River Valley.

Rose Kennedy Children’s Evaluation and Rehabilitation Center (CERC)
Albert Einstein College of Medicine of Yeshiva University
1410 Pelham Parkway South
Bronx, NY 10461
Phone: 718-430-8500 Fax: 718-892-2296
Contact: Mireida Sanchez, Intake Coordinator
cerc@aecom.yu.edu
www.aecom.yu.edu/cerc/
Provides multidisciplinary evaluations and individualized therapeutic interventions to clients with a broad spectrum of neurodevelopmental and related disabilities, including FAS and ARND.

Special Diagnostic Center at Women and Children’s Hospital in Buffalo
219 Bryant Street
Buffalo, NY 14222
Phone: 716-878-7530 Fax: 716-878-7409
Contact: Luther Robinson, MD, Associate Professor of Pediatrics, Director, Special Diagnostic Clinic
lrobinson@upa.chob.edu
The Special Diagnostic Center is the locus for diagnosis of FASD in Western New York and beyond. Individuals with known or suspected FASD are evaluated by a dysmorphologist, and when indicated referrals for additional services such as developmental testing, imaging, genetic testing or other genetic services, or neuropsychological testing are made. Other services such as family support services are available as needed or requested.

University of Rochester School of Medicine- Division of Pediatric Genetics
601 Elmwood Avenue
Box 777
Rochester, NY 14642
Phone: 585-275-5857
Contact: George Segel, MD
george_segel@urmc.rochester.edu

Women and Children’s Hospital of Buffalo
219 Bryant Street
Buffalo, NY 14222
Contact: Luther K. Robinson, MD, Associate Professor of Pediatrics, Director, Special Diagnostic Clinic
lrobinson@upa.chob.edu

Other

New York Commission on Quality of Care for the Mentally Disabled
401 State Street
Schenectady, NY 12305
Phone: 518-381-7098 Fax: 518-381-7095 Toll Free: 800-624-4143
www.cgc.state.ny.us
Protection and advocacy agency for persons with developmental disabilities.

New York State Department of Health, Congenital Malformations Registry
547 River Street, Room 200
Troy, NY 12180
Phone: 518-402-7990
Contact: Charlotte Druschel, MD, MPH, Medical Director, Deborah Fox, MPH, Project Coordinator
cmd05@health.state.ny.us, djf03@health.state.ny.us
www.health.state.ny.us/nysdoh/cmr/cmrhome.htm
The Congenital Malformations Registry (CMR) of the New York State Department of Health administers a Population-Based Surveillance of Fetal Alcohol Syndrome in New York State. The registry is a repository for case reports on children who are born or reside in New York State and are diagnosed before the age of two years with any structural, functional or biochemical abnormality determined genetically or induced during gestation and not due to birthing events.

Pius X11 Youth and Family Services- Foster Boarding Home Program/Adoptions
188 W 230th Street
Bronx , NY 10463
Phone: 718-562-7855 Fax: 718-562-7855
Contact: Robert Martinez , Program Director
Pius X11 Youth and Family Services also has 2 residential treatment centers for New Yorkers, ages 12-17, who have conduct disorders. For information, call 914-469-2121 (Chester, NY) and 914-876-4084 (Rhinecliff, NY) Camps also available.

Prevention Programs, including Treatment for Women

North Country Prenatal/Perinatal Council, Inc
200 Washington Street, Suite 300
Watertown, NY 13601
Phone: 315-788-8533 Toll Free: 800-279-8679
www.ncppcinc.org/index.html
The North Country Prenatal/Perinatal Council, Inc. (NCPPC) was established in June 1988 as a non-profit regional coordinating council dedicated to improving outcomes for maternal, infant, and family health in Jefferson, Lewis, and St. Lawrence Counties. Provides case management services for high risk women and children.

PEDECS – University of Rochester Medical Center – Department of Obstetrics and Gynecology
601 Elmwood Avenue
Rochester, NY 14642-8668
Phone: 585-275-3638
Contact: Richard Miller, M.D.
PEDECS – can provide teratogen information for patients and health professionals in New York State’s Finger Lakes region.

Early Support for Lifelong Success Plus
www.thefamilycenter.org
315 West 36th Street, 4th Floor
New York, NY 10018
Project Director: Marya Gilborn mgilborn@thefamilycenter.org
Phone: (212) 766-4522An expert support system for New Yorkers confronting a family crisis or loss. Their team of social service, legal, and health professionals uses a comprehensive yet personalized approach. Programs are tailored to each family, rendering essential care on all fronts. Together, the team works to keep families stronger longer.

Treatment Services for Affected Individuals

Developmental Pediatrics
7B Johnson Road
Latham, NY 12110
Phone: 518-782-7733
Contact: Dr. Anthony Malone

North Shore University Hospital
Department of Neurology
300 Community Drive
Manhasset, NY 11030
Phone: 516-562-3054
Neuropsychological Services including evaluations for children and adults. Medicaid accepted. Dr. Barbara Wilson, Dr. Paul Mattis, Dr. Prena Shah, Dr. William Matos

Steven Alter, PhD
110-45 Queens Blvd.
Suite A2
Forest Hills, NY 11375
Phone: 718-261-3363

Supporting Special Needs
6532 Thunder Road
LaFayette, NY 13027
Phone: 315-559-4426
Contact: Rachel Scalzo, LMSW
info@supportingspecialneeds.com
www.supportingspecialneeds.com/
Supporting Special Needs (SSN) is dedicated to improving the lives of individuals and families affected by a disability through online therapy. The special needs community encompasses a wide range of abilities and challenges and sometimes it can be difficult to cope with the issues that arise on life’s journey. SSN seeks to assist those who are struggling in a positive, nonjudgmental manner through online counseling as it provides an outlet to recognize strengths, discuss challenges, and reach goals in a safe, convenient way.

Vincent Guarrera, DSW, LCSW
20 Canterbury Road
Suite 2000
Great Neck, NY 11021
Phone: 516-829-9362

Statewide Services

Growing Up Healthy Hotline
Toll Free: 1-800-522-5006
Information about healthcare, nutrition and other health & human services, including FASD. Operates 24/7 in English, Spanish and other languages.

New York State FASD Coordinator
New York State Office of Alcoholism and Substance Abuse Services
1450 Western Avenue
Albany, NY 12203
Phone: (518) 457-4384
Contact: Margo B. Singer, FASD State Coordinator
margosinger@oasas.ny.gov

NYS Developmental Disabilities Planning Council
155 Washington Avenue
2nd Floor
Albany, NY 12210
Phone: 518-486-7505 Fax: 518-402-3505
Contact: Sheila M Carey, Executive Director
www.ddpc.state.ny.us
This program help New Yorkers with developmental disablilities receive the necesary services and support.

NYS Early Intervention Program
Corning Tower Building
Room 28
Albany, NY 12237
Phone: 518-473-7016
Contact: Donna M Noyes, PhD, Director
eip@health.state.ny.us
Can provide contact information on local early intervention services to infants and toddlers with disablilities and their families.

NYS Office of Alcoholism & Substance Abuse Services FASD Initiative
1450 Western Avenue
Albany, NY 12203
Phone: 518-457-4384 Toll Free: 1-877-8 HOPENY
Contact: Margo Singer, FASD State Coordinator
margosinger@oasas.state.ny.us
www.oasas.state.ny.us/fasd/index.cfm; www.oasas.state.ny.us
New York States project is aimed at reducing the number of FASD related births by eliminating alcohol consumption by women of childbearing age and pregnant women. The New York State Office of Alcoholism & Substance Abuse Services (OASAS) plans to conduct a multi-year, statewide effort to prevent Fetal Alcohol Spectrum Disorders (FASD) through: (1) increased outreach, identification and referral of at-risk pregnant women and women of childbearing years (2) training on FASD for health care professionals working with at-risk women; and (3) increased awareness by women of childbearing years about the dangers of alcohol consumption during pregnancy. The toll free hotlnie can make referrals for adults and children to alcoholism and substance abuse prevention and treatment programs across New York.

NYS Office of Mental Retardation & Developmental Disabilities
Institute for Basic Research in Developmental Disabilities
1050 Forest Hill Road
Staten Island, NY 10314
Phone: 718-494-0600
www.omr.state.ny.us/
Conducts basic & clinical research to further the prevention, early detection, and treatment of mental retardation & developmental disabilities.