State Resources for Missouri

Disabilities Advocacy & Support Network (S.W. Missouri)
1515 E. Pythian
Springfield, MO
Phone: (417) 895-7464
The Network is a parent run support organization which provides emotional and educational support, awareness within the community, and a therapeutic social outlet for individuals with development disabilities and their families. It serves the following counties in Missouri: Christian, Dallas, Douglas, Greene, Hickory, Laclede, Ozark, Polk, Stone, Taney, Webster, and Wright. See website for a complete list of programs.

First Steps – Jackson County
Phone: 816-363-1078 Toll Free: 1-866-644-2454
Provides intervention and family support services for children ages from birth to three who meet eligibility criteria (developmental delay, preterm birth, or other qualifying conditions, including fetal alcohol syndrome).

First Steps – St. Louis City
Phone: 314-453-9203 Toll Free: 1-866-583-2392
Provides intervention and family support services for children ages from birth to three who meet eligibility criteria (developmental delay, preterm birth, or other qualifying conditions, including fetal alcohol syndrome).

First Steps – St. Louis County
Phone: 314-453-9203 Toll Free: 1-866-583-2392
Provides intervention and family support services for children ages from birth to three who meet eligibility criteria (developmental delay, preterm birth, or other qualifying conditions, including fetal alcohol syndrome).

Jenny Hatfield-Callen
618 N. 31st Street
Kansas City, MO 66102
Phone: 913-621-3280
hatfieldcallenj@umkc.edu or timandjenny@live.com
Trained mentor parent-parent of a young adult with FASD. Also an information specialist.

Melinda Ohlemiller, Parent and Director of Prevention and Advocacy
1816 Lackland Hill Parkway
Suite 200
St. Louis, MO 63146
Phone: 314-817-2285
Contact: Melinda Ohlemiller
mohlemiller@slarc.org
St. Louis Arc – Provides famliy and profesional education materials, resources and presentations on FAS; parent mentoring available in some areas.

Missouri Developmental Disabilities Resource Center
Institute for Human Development (UCE), University of Missouri-Kansas City
215 West Pershing Road, 6th floor
Kansas City, MO 64108
Phone: 816-235-1763
Contact: Jenny Hatfield-Callen, Parent Coordinator
hatfieldcallenj@umkc.edu
Provides Information and Referral Specialist MDDRC.

Parents as Teachers – National Center
2228 Ball Dr.
St. Louis, MO 63146
Phone: 314-432-4330 Fax: 314-432-8963
Contact: Marsha Gebhart
gebhart@parentsasteachers.org
www.parentsasteachers.org
Provides information on child development, FAS and other special needs. Also provides an home-visiting program available for infants and toddlers.

Diagnosis of FASD

Cardinal Glennon Children’s Hospital – Division of Medical Genetics
1465 S. Grand Blvd.
St. Louis, MO 63104
Phone: (314) 577-5639 Fax: (314) 268-4112
Contact: Stephen Braddock, M.D.
braddock@slu.edu
www.cardinalglennon.com/Pages/default.aspx
St. Louis University School of Medicine; Physicians see patients in Illinois and Missouri.

Children’s Mercy Hospital Genetics Clinic
2401 Gillham Road
Kansas City, MO 64108
Phone: (816) 234-3771 Fax: (816) 346-1378
www.childrensmercy.org/content/view.aspx?id=11152
Clinic sees patients from Missouri and Illinois.

St. Louis Children’s Hospital – Department of Genetics
1 Childrens Place
St. Louis, MO 63110
Phone: 314-454-5437 Fax: 314-454-2075 Toll Free: 800-678-5437
Contact: Kathy Grange, M.D.
www.stlouischildrens.org/our-services/genetics-and-genomic-medicine
The Division of Medical Genetics is uniquely qualified to treat a wide variety of genetic diseases and has immediate access to three excellent onsite genetics laboratories. The division supplements a thorough physical examination, medical history and family history with a variety of measurement techniques and screening studies to determine a diagnosis and treatment plan.

University of Missouri Hospital and Clinics – Department of Medical Genetics
1 Hospital Drive
Columbia, MO 65212
Phone: 573-882-6991 Fax: 573-884-3543
Contact: Jerome Gorski, M.D.
www.genetics.missouri.edu/
The department also provides information on teratogens for patients and health professionals in Missouri.

Prevention Programs, including Treatment for Women

Missouri Department of Health and Senior Services – Bureau of Genetics and Healthy Childhood
PO Box 570
Jefferson City, MO 65102
Phone: 573-751-6266 Fax: 573-751-6485 Toll Free: 1-800-877-6246
info@health.mo.gov
health.mo.gov/living/families/genetics/index.php

Missouri Department of Health and Senior Services – Healthy Families and Youth
PO Box 570
912 Wildwood
Jefferson City, MO 65102
Phone: (573) 751-6400
info@health.mo.gov
www.dhss.mo.gov
Provides coordination and administration of prenatal substance abuse monitoring and prevention services for the State of Missouri.

Missouri Department of Mental Health – Division of Alcohol and Drug Abuse
PO Box 687
Jefferson City, MO 65101
Phone: 573-751-4942 Fax: 573-751-8224 Toll Free: 800-364-9687
adamail@dmh.mo.gov
www.dmh.missouri.gov/ada/adaindex.htm
Provides treatment resources for pregnant women who are in need of addiction-related services.

Missouri Recovery Network
1905 Stadium Blvd
Jefferson City, MO 65110
Phone: 573-634-1029 Fax: 816-318-3247
www.morecovery.org
Provides advocacy and support for those recovering from substance abuse.

National Council on Alcoholism and Drug Abuse – St. Louis Area Chapter
8790 Manchester
Brentwood, MO 63144
Phone: 314-962-3456
www.ncada-stl.org
Provides resources and information on alcohol-related problems and issues; includes public awareness and prevention services.

Truman Medical Center, Behavioral Health Program
300 West 19th Terrace
Kansas City, MO 64108
Phone: 816-404-5700 Fax: 816-404-6045
www.trumed.org/truweb/bh/BH.aspx
Provides treatment for adolescents and adults. (Outpatient only)

TIES (The Children’s Mercy Hospital)
www.childrensmercy.org
2401 Gillham Road
Kansas City, MO 64108-9898
Phone: (816) 234-3021
Project Director: Oneta Templeton ojtempleton@cmh.edu
The program is an intensive, multi-agency effort providing comprehensive home-based services to pregnant and postpartum women and their families affected by alcohol or other drugs and/or HIV. Using a community-oriented approach, this project provides individualized, culturally appropriate services including crisis intervention, support for substance abuse treatment, supportive counseling, child health and development, parenting education, and connection to other community services.

Treatment Services for Affected Individuals

Missouri Department of Mental Health – Division of Developmental Disabilities
1706 E Elm Street
Jefferson City, MO 65102
Phone: 573-751-4054 Fax: 573-751-9207
ddmail@dmh.mo.gov
www.dmh.missouri.gov/mrdd/index.htm
The division improves the lives of eligible persons with developmental disabilities through programs and services to enable those persons to live independently and productively. The regional centers, the primary points of entry into the system, provide assessment and case management services, which include coordination of each client’s individualized habilitation plan.

Community Support

Family Information Network
9109 Main Street
Kansas City, MO 64114
Phone: 816-361-7589
Contact: Peggy Oba, R.D.H., M.B.A.
PSOBA@aol.com
Provides FAS information for other countries as well as the U.S.

Missouri Parent Training & Information (MPACT)
8301 Stateline Road
Suite 204
Kansas City, MO 64114
Toll Free: 800-743-7634
info@ptimpact.org
www.ptimpact.com
Provides advocacy training throughout Missouri. Founded by parents of children with disabilities.

St. Louis Arc
1177 North Warson Rd.
St. Louis, MO 63132
Phone: 314-817-569-2211 ext. 247 Fax: 314-569-0778 Toll Free: 1-877-WholeNine
www.slarc.org or www.thewhole9.org
Provides family and professional education materials; resources and presentations on FASD as well as family support.

Statewide Services

March of Dimes
11829 Dorsett Road
Maryland Heights, MO 63043
Phone: (314) 513-9990 Fax: (314) 513-9997
mo633@marchofdimes.com
www.marchofdimes.com/missouri
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy.
Midwest Regional Fetal Alcohol Syndrome Training Center (MRFASTC)

Midwestern FASD Regional Training Center (MRFASTC) Saint Louis University/University of Arkansas for Medical Sciences/University of Oklahoma Health Sciences Center/Nurses for Newborns Foundation
1402 South Grand Avenue
St. Louis, MO 63104
Phone: (314) 977-8481
Fax: (314) 977-5268
Contact: Leigh Tenkku, PhD, MPH (MRFASTC PI & Team Director for MRFASTC-Missouri)
Email: tenkku@slu.edu
www.mrfastc.org
The Midwest Regional FAS Training Center was formed to improve health professional’s knowledge and skill regarding FAS recognition, diagnosis, treatment, management, and prevention in a 7 state region around Missouri. Funding is provided by the Centers for Disease Control and Prevention. Project collaborators include University of Arkansas Medical Center, University of Oklahoma, Nurses for Newborns, Physicians, Practice, St. Louis University, the University of Missouri-Columbia, the Missouri Institute of Mental Health, and the St. Louis Arc.

Missouri Protection and Advocacy Services
925 S Country Club Drive
Jefferson City, MO 65109
Phone: 573-893-3333 Fax: 573-893-4231 Toll Free: 800-392-8667
www.moadvocacy.org/
Statewide agency for persons with developmental disabilitiesdedicated to protecting rights.

NOFAS-Missouri
St. Louis, MO
Phone: 1-800-552-8522
Contact: Dr. Leigh Tenkku
NOFAS-Missouri is committed to raising public and professional awareness of the dangers of drinking alcohol during pregnancy and addressing the needs of individuals with Fetal Alcohol Syndrome Spectrum Disorder (FASD) and their families.

The Arc of the US Missouri Chapter
P.O. Box 7823
Linn Creek, MO 65205
Phone: (573) 825-8889
info@arcofmissouri.org
www.arcusmo.com/
The Arc of the United States Missouri Chapter is a grassroots organization working to support and empower persons with intellectual and developmental disabilities and their families through advocacy and education, expanding individual choices and promoting community inclusion.