State Resources for California

American Indian Fetal Alcohol Education
8205 Wakefield Avenue
Panorama City, CA 91402
Phone: (626) 299-4503 Fax: (626) 458-6084
Contact: Danielle Glenn-Rivera
danielleosageinla@msn.com
We provide classes on Fetal Alcohol Spectrum Disorders, specializing on the American Indian population.

Debra McFarren, Parent and Professional
CA
Contact: Debra McFarren
kidzmom3@aol.com

Diane Kerchner, Educational Therapist and Parent
1525 Avenida Loma Vista
San Dimas, CA 91773
Contact: Diane Kerchner
dkerchner@earthlink.com
FAS-CA@yahoogroups.com
Moderator for online support group of California

Exceptional Family Resource Center
9245 Sky Park Court
Suite 130
San Diego, CA 92123
Phone: (619) 594-7394 Fax: (858) 268-4275 Toll Free: 1-800-281-8252
Contact: Sherry Torok
storok@projects.sdsu.edu
www.efrconline.org/
The Exceptional Family Resource Center (EFRC) is a community-based collaborative agency, staffed by parents and professionals. It is designed to serve families of individuals with special needs by providing a broad continuum of information, education, and support. Services and supports are offered in English and Spanish.

Fetal Alcohol Teamwork, Consultation and Training
Sonoma, CA
Phone: (707) 996-7847
Contact: Kathryn Wosser Page, Ph.D.
www.fatcat.vpweb.com
For parent support and advocacy, behavioral consultation and resources. Dr. Page has dedicated herself to the field of FASD for over ten years. Previously, she has been a Guidance and Assessment Consultant for the San Lorenzo School District; Clinical Director of Family Education Foundation, where she worked with at-risk youth and pregnant/parenting teens; and long-time advocate for people with disadvantages of all kinds.

Juan and DeeDee Ortiz, Parents
2536 North Avenue
Chico, CA 95973
Phone: 530-893-1255
Contact: Juan and DeeDee Ortiz

Linda Hargreaves, Parent
CA
Phone: 510-733-5376
Contact: Linda Hargreaves
hargrlin@aol.com

Making a Difference Association
1001 North La Cadena Drive
Colton, CA 92324
Phone: (909) 420-0413 Fax: (909) 513-0410
Contact: Tina Squires, Executive Assistant
makingadifference112@gmail.com
www.makingadifferenceassociation.org
Making A Difference Association provides a support group for foster and adoptive parents of drug-and alcohol-exposed children, regardless of lack of current diagnosis. Come connect with others who share your experience. Learn more effective ways to help your children and obtain information in the community. We meet on the second Thursday of each month. Please call for information.

Margaret Ruby, Parent
CA
Contact: Margaret Ruby
ruby706@sbcglobal.net
In Monterrey County, California.

Parent to Parent Group
4761 Jessie Avenue
LaMesa, CA 91941
Contact: Lynn Belke

Paulette Benson, Teacher and Parent
CA
Phone: 626-836-8680
Contact: Paulette Benson
la.townhall@verizon.com

Rialto Support Group
1607 West Townsend St.
Rialto, CA 92377-3857
Phone: (909) 350-4895
Contact: Tammy DeHesa, Organizer
DeHesaEight@HotMail.com
A support group for foster and adoptive parents of drug-and alcohol-exposed children, regardless of lack of current diagnosis. Come connect with others who share your experience. Learn more effective ways to help your children and obtain information in the community. We meet the third Tuesday of each month from 7 – 8:30 pm. Please call for more information.

Southern California FASD – ARND Support Network
CA
Phone: 760-730-1972
Contact: Valerie Lipow
vallipow@aol.com
Information and support network in for Southern California: San Diego, Imperial, Orange, Riverside, San Bernardino, Los Angeles, Ventura,San Luis Obispo, Santa Barbara and Kern Counties. Designed for parents, caregivers, advocates, educators and treatment professionals of persons who have been diagnosed with or who are suspected of having FASD/ARND, and students/professionals who are interested in the challenges faced by families affected by these conditions. Meets monthly at rotating locations to accommodate participants’ needs. Members share experiences, discuss strategies, network ideas, learn about current issues and help our families succeed.

Southern California FASD – ARND Support Network on Facebook
CA
Contact: Valerie Lipow
vallipow@aol.com
www.facebook.com/home.php?sk=group_195162513856227
This is a support and information discussion network for adults who are involved in the care, treatment, research and/or advocacy for persons diagnosed with or suspected of having FASD/ARND. It is designed for Facebook users who live in or who are looking for resources in any of the following counties in California: San Diego, Imperial, Orange, Riverside, San Bernardino, Los Angeles, Ventura, Santa Barbara and Kern. Individuals outside of these areas may participate, but all events and discussions about resources and services are targeted to Southern California. The intent of this group is to plan support group meetings, conferences, and to post discussions, documents and links which residents of Southern California might find useful. Messages and updates posted to this group page can be forwarded to participants email address using the group’s settings. Interested individuals must have a valid Facebook.com account and must be added by an current group participant.

Diagnosis of FASD

Cedars Sinai Medical Center – Medical Genetics/Birth Defects Center
8700 Beverly Blvd Pact
Suite 400
Los Angeles, CA 90048
Phone: (310) 423 – 9914 Toll Free: 800-233-2771
Contact: John Graham
john.graham@cshs.org
Dr. Graham’s background in public health, communication disorders, developmental pediatrics and dysmorphology has helped to branch his research into a wide variety of medical conditions that lead to developmental disabilities. He also has a research interests in various teratologic disorders and craniofacial disorders, such as craniosynostosis, plagiocephaly, cleft lip and palate, hemifacial microsomia and microtia. He also, diagnoses FAS. Additional research interests include the genetics of mental retardation and common birth defect syndromes. He has written well over 200 peer-reviewed scientific articles and book chapters and recently revised his book, Smith’s Recognizable Patterns of Human Deformation.

San Diego State University – Center for Behavioral Teratology
6363 Alvarado Court
Suite 100
San Diego, CA 92120
Phone: (619) 594-7228 Fax: (619) 594-1895
Contact: Sarah Mattson, Ph.D., Project Coordinator
smattson@sunstroke.sdsu.edu
www.psychology.sdsu.edu/new-web/facultystaff/mattson.html
The Center for Behavioral Teratology is a University-recognized research center focused on the effects of prenatal exposure to alcohol and other developmental disabilities. They are particularly interested in the neurobehavioral profile of fetal alcohol spectrum disorders. Both neuropsychological and neuroimaging studies are being conducted.

Santa Teresa Medical Center, Department of Genetics
5755 Cottle Road
Building 1
San Jose, CA 95123
Phone: (408) 972-3300 Fax: (408) 972-3298
Contact: David Witt, MD
www.permanente.net/homepage/kaiser/pages/c6139-top.html

UCLA Fetal Alcohol Syndrome and Related Disorders Clinic
760 Westwood Plaza
68-265A Semel Institute
Los Angeles, CA 90095
Phone: (310) 206-6528 Fax: (310) 206-4446 Toll Free: 1-800-825-9989
Contact: Mary O’Connor, Ph.D.
moconnor@mednet.ucla.edu
www.semel.ucla.edu/fas

UCSD Department of Pediatrics
Division of Dysmorphology
3020 Children’s Way, MC 5109
San Diego, CA 92123-5109
Phone: (619) 543-2040 Fax: (619) 543-2066
Contact: Kenneth Lyons Jones, MD
klyons@ucsd.edu
The medical service program of the Division of Dysmorphology, University of California, San Diego, is a multifaceted program aimed at evaluation of children with birth defects; follow-up with respect to their chronic care; genetic and teratogenetic counseling for parents; and community education programs regarding birth defects.

UCSF Biochemical Genetics Service
P O Box 0706
533 Parnassus Ave. Rm 4108A
San Francisco, CA 94143-0706
Phone: 415-476 2871 Fax: 415-476 9976
Contact: Seymour Packman, MD
pack@itsa.ucsf.edu

Valley Children’s Hospital
Department of Medical Genetics/Metabolism
9300 Valley Children’s Place
Madera, CA 93636
Phone: (559) 353-6400
Contact: Susan Winter, Geneticist
childrenscentralcal.org/Specialties.asp?id=488
The Department of Genetic Medicine and Metabolism offers both diagnostic and follow-up services.

Other

California Birth Defects Monitoring Program
1917 Fifth Street
Berkeley, CA 94710
Phone: (510) 549-4155
info@cbdmp.org
www.cdph.ca.gov/programs/cbdmp/Pages/default.aspx
The California Birth Defects Monitoring Program (CBDMP) collects and analyzes data to identify opportunities for preventing birth defects and improving the health of babies.

CTIS Pregnancy Risk Information Line
Dysmorphology and Teratology Division
UCSD Department of Pediatrics
CA
Toll Free: 1 -800 – 532-3749
ctispregnancy.org/
The Hotline offers free information over the telephone to pregnant women, their partners and health care providers in California. Callers can receive written information and appropriate referrals for potentially “at risk” pregnancies.

Disability Rights California
1831 K Street
Sacramento, CA 95811
Phone: (916) 504-5800 Fax: (916) 504-5802 Toll Free: 1-800-776-5746
legalmail@pai-ca.org
www.disabilityrightsca.org/
Protection and advocacy agency for persons with developmental disabilities. Offices are located in every region of the state.

Western Regional Training Center on FASD
3945 E. Whittier Blvd.
Los Angeles, CA 90023
Phone: (323) 307-0443 Fax: (323) 307-0467
Contact: Maria Correa, CHOICES Program Coordinator
mcorrea@altamed.org

Prevention Programs, including Treatment for Women

Alameda County Medical Center
1411 East 31st Street
Oakland, CA 94602
Phone: (510) 437-5192
www.acmedctr.org/
The mission of the Substance Abuse Department is to improve the social functioning and the health of individuals in the community that suffer from the debilitating effects of drugs and alcohol. The department provides substance abuse treatment services, case management, childcare, acupuncture, mental health services, and inpatient screenin.

BabyCal
California Department of Health
714 P Street, Room 1650
Sacramento, CA 95814
Phone: 916-657-3719 Fax: 916-657-3224 Toll Free: 800-222-9999
www.dhs.ca.gov/babycal/default.htm
BabyCal is a statewide education and outreach program to encourage women to seek early prenatal care. The number listed above is available 24 hours a day, 7 days a week.

California Department of Alcohol and Drug Programs
1700 K Street
Sacramento, CA 95811
Phone: 916-323-4445 Fax: 916-445-0846
www.adp.ca.gov/women/index.shtml
Perinatal treatment services in California continue to grow and currently serve over 37,000 women and 56,000 children annually. In May 2007, Director Rene Zito announced an expansion of the previous Office of Perinatal Substance Abuse (OPSA) with the establishment of the Office of Women’s and Perinatal Services (OWPS). Ms. Zito explained that OWPS marks “the beginning of many enhancements to improve alcohol and other drug (AOD) services for women of all ages, their children, and their families.”

Families First
www.ucsdmcap.org
4076 Third Ave., Suite 301
San Diego, CA 92103
(619) 543-8089
Project Director: Stephen A. Spector, M.D. saspector@ucsd.edu
The project coordinates integrated medical and mental health, family-based early substance abuse prevention, early intervention, child and family mental health counseling, and home-based parenting skills training.  The services are provided to HIV positive, substance abusing women who are of childbearing age and/or pregnant; perinatally exposed (HIV and dangerous drug) infants and young children; and their biological families, including older siblings throughout San Diego county.

Family Link “Plus” Program
www.cpinc.org
135 Paul Drive
San Rafael, CA 94903
Phone: (415)492-4444
Project Director: Sushma Taylor staylor@cpinc.org
The agency’s mission is to provide comprehensive social, educational, vocational, medical, psychological, housing, and rehabilitation services to combat social problems such as substance abuse, poverty, unemployment, and homelessness. CPI offers rehabilitation and treatment services that interrupt the abusive cycles of psychological, social, and economic dislocation by providing critical training and support so individuals and families can claim self-worth and dignity.

Primeros Pasos
www.scccc.org/community-recovery-services/community-recovery-services
195 Harvey West Boulevard
Santa Cruz, CA 95060
Phone: (831) 423-2003 x105
Project Director: Will O’Sullivan will.osullivan@scccc.org
The focus of the program is prevention of placement of children into the child welfare system due to abuse or neglect stemming from parental drug or alcohol abuse.The emphasis of Primeros Pasos is on engaging young Latina mothers in drug abuse treatment and providing wrap-around services for the entire family. Services include quality early education in and out of the home; parent education, including parent-child activities; and comprehensive health services, including services to women after birth.

Resources for Pregnant Women
CA
beginningsofslo.org/?page_id=694
SLO County Drug and Alcohol Services provides residential services and counseling to women who are pregnant and/or parenting and need support to stay sober.

Resources for Substance Abuse Prevention in Women
CA
beginningsofslo.org/seek/need-help-2/
Providing information, emotional and practical support to pregnant teen and adult women, babies and their families in their first year after birth.All services FREE: pregnancy testing, educational counseling, infant developmental assessments, rental deposit assistance and practical help with Maternity Clothing, Infant Clothing, Emergency supply of diapers and formula, and a variety of donated supplies.

Treatment Services for Affected Individuals

California Early Start
1600 9th Street
Room 330
Sacramento, CA 94244-2020
Phone: 916-654-1593 Fax: 916-654-3255 Toll Free: 800-515-BABY
Contact: Mary Lou Hickman
www.dds.ca.gov/EarlyStart/home.cfm
Early Start is Californias system of early intervention services provided to infants and toddlers with disabilities and their families. It is a multiagency effort by the Department of Developmental Services and the California Department of Education that encourages partnerships between families and professionals, family support, and coordination of services. The statewide system of early intervention services is available throughout California and can be accessed through regional centers for developmental disabilities, county offices of education, local school districts, health or social service agencies, and family resource centers/networks in your community.

Native American Health Center
2950 International Blvd
Oakland, CA 94601
Phone: (510) 535-4400
www.nativehealth.org/
Native American Health Center assists American Indians and Alaska Natives to improve and maintain their physical, mental, emotional, social and spiritual well-being with respect for cultural traditions and to advocate for the needs of all Native American people.

Pasadena Child Development Associates
620 North Lake Avenue
Pasadena, CA 91101
Phone: (626) 793-7350 Fax: (626) 793-7341
www.pasadenachilddevelopment.com
Pasadena Child Development Associates is a private child development group practice serving children from birth to 12 years of age, and families, when there is any concern regarding development or behavior. This comprehensive group of child specialists provide evaluation, consultation and intervention services, as a multi-disciplinary team.

Patricia Wilbarger, O.T.
642 Island View Drive
Santa Barbara, CA 93109
Phone: 805-962-8233
Contact: Patricia Wilbarger
pwilbar@verizon.net
Occupational therapist and clinical psychologist who is an expert on sensory integration.

Community Support

California Fetal Alcohol Syndrome Organization
542 Fremont St
PO Box 156
Colusa, CA 95932
Phone: (530)458-2782
Contact: Amber Kesterson, President
akesterson@calfas.org
www.calfas.org
CalFAS, The California Fetal Alcohol Spectrum Organization was born from the desire of a group of parents of children with FASD to reach out to their local, state and national community. The CalFAS Mission is dedicated to two simple goals, to prevent FASD and eliminate it for the children of tomorrow and to intervene and provide assistance to those who are living with FASD today.

UCLA Ties for Adoption
1000 Veteran Avenue
Suite 850
Los Angeles, CA 90095
Phone: (310) 825-6110
Contact: Dorli Burge, Susan Edelstein
www.tiesforadoption.ucla.edu/
TIES for Adoption promotes the successful adoption, growth, and development of children with special needs – including those with prenatal substance exposure who are in foster care. TIES for Adoption significantly reduces the barriers to the adoption of these children, and helps to support their successful transition into their new permanent homes. Services are available to adoptive families of children under nine years of age who are placed and referred by the Los Angeles County Department of Children and Family Services.

Statewide Services

California FASD Coordinator
1700 K Street
Sacramento, CA 95811-4037
Phone: (916) 322-0495 Fax: (916) 324-4886
Contact: Tara Torrant , Supervisor
tara.torrant@adp.ca.gov

March of Dimes
101 Montgomery Street, Suite 300
San Francisco, CA 94104
Phone: (415) 788-2202 Fax: (415) 788-2802
www.marchofdimes.com/california/
March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out their mission through research, services, education and advocacy

The Arc of California
1225 8th Street, Suite 350
Sacramento, CA 95814
Phone: (916) 552-6619 Fax: (916) 441-3494
tony@thearcca.org
www.thearcca.org/

Western FASD Regional Training Center, University of California, Los Angeles
Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles
760 Westwood Plaza, Room 48-240
Los Angeles, CA 90024
Phone: (310) 825-5213
Contact: Margaret Stuber, MD
mstuber@mednet.ucla.edu
www.semel.ucla.edu/fas/
The WRTC for FASDs seeks to reduce the incidence of alcohol-exposed pregnancies and to increase the availability and quality of services for individuals affected by Fetal Alcohol Spectrum Disorders and their families through improved education and training of medical and other health students and professionals.

FAS Trainer/Consultants

Paul and Melissa Hradecky
CA
Phone: 951-687-5087
Contact: Paul and Melissa Hradecky, Educator
mhradecky@sbcglobal.net