Fetal Alcohol Syndrome, mental retardation at NOFAS
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National Organization on Fetal Alcohol Syndrome, Protecting children and families by fighting the leading known cause of mental retardation and birth defects
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State Resources for Florida


Community Resources and Family Support Groups
 
Miami Children's Hospital, Neurology Dept.
3200 SW 60th Ct.
Suite 302
Miami, FL 33155
Phone: 305-662-8347  Fax: 305-663-2813  
Contact: Robert Cullen
http://www.mch.com/


Denise and Joe Costa, Parents
261 Bay Drive
Key Largo, FL 33037
Phone: 305-453-0906  Fax: 305-453-1006  
Contact: Denise and Joe Costa
joelargo@aol.com


Family Network on Disabilities of Florida
2735 Whitney Road
Clearwater, FL 33760-1610
Phone: 727-523-1130  Fax: 727-523-868  Toll Free: 800-825-5736
http://www.fndfl.org
Parent training and information project that is concerned with special education needs.

Judy Messer, Parent
FL
Contact: Judy Messer
MSJUDY2001.aol.com


Lawrence and Sue Egert, Parents
626 Spring Oaks Boulevard
Altamonte Springs, FL 32714
Phone: 407-774-1072  Fax: 407-774-1192  
Contact: Lawrence and Sue Egert
wishes3@excelonline.com
The Egerts live near Orlando.

Linda Falkner
1510 S Miller Rd
Valrico, FL 33594
Contact: Linda Falkner
lfalkner@tampabay.rr.com
http://www.alibris.com/search/search.cfm?nwork=3082927&qsort=p
Former foster care provider and author of book on FAS/FAE titled "I Would Be Loved."

Partnership for Safe Children
4630 17th Street
Sarasota, FL 34235
Phone: 941-371-4799  Fax: 941-371-5439  
Trains foster care parents and provides case management for at-risk children in the state of Florida.

Pat Gorski, Parent
1081 Sunswept Road N E
Palm Bay, FL 32905
Phone: 321-723-0030  
Contact: Pat Gorski
ennayttap44@cfl.rr.com
Trains school personnel and health professionals about FAS/FAE. She is the contact person for the FAS Prevention Committee in Brevard County.

Diagnosis of FAS
 
All Children's Hospital
880 Sixth Street S
Suite 240
St. Petersburg, FL 33701
Phone: 727-892-6760,   Fax: 727-892-6751   
Contact: Henry Shapiro, Rebecca Sutphen
hshapiro@hsc.usf.edu


Nemours Children's Clinic, Orlando Divison of Genetics
8e W Columbia Street
Orlando, FL 32806
Phone: 407-650-7245  Fax: 407-650-7248  
Contact: John McReynolds
www.nemours.org


Paul Benke, M.D. Geneticist - Mailman Center for Child Development
Jackson Memorial Hospital
1601 NW 12th Ave.
Miami, FL 33136
Phone: 305-243-6006  
Contact: Paul Benke
p.benke@miami.edu


Shands Hospital - Department of Pediatric Neurology (University of Florida)
1600 S W Archer Road
Room HD403
Gainesville, FL 32610
Phone: 352-392-6442  Fax: 352-392-9802  
Contact: Paul Carney
carnepr@peds.ufl.edu


The Florida Center for Child and Family Development
4620 17th St.
Sarasota, FL 34235
Phone: 941-371-8820  
Contact: Kathryn Shea
kshea@cdc4kids.org
http://www.thefloridacenter.org/
the only assessment clinic in the state of Florida that evaluates children and adults for FASD. We accept third party payment but also have grant funding available so no one is turned away due to their inability to pay. The only requirement for evaluation is the person must be a resident of Florida.

University of South Florida - Developmental Evaluation and Intervention Program
17 Davis Boulevard
Suite 200
Tampa, FL 33606
Phone: 813-259-8867  
Contact: Jaime Frias
jfrias@hsc.usf.edu


University of South Florida - Regional Genetics Program
17 Davis Blvd.
Suite 604
Tampa, FL 3360
Phone: 813-233-2720  Fax: 813-233-2734  
Contact: Boris Kousseff
bkoussef@hsc.usf.edu
Information on teratogens; diagnosis and referral.

Other
 
Advocacy Center
2671 Executive Center, Circle West
Suite 100
Tallahassee, FL 32301
Phone: 850-488-9071  Fax: 850-488-8640  Toll Free: 800-342-0823
www.advocacycenter.org
Protection and advocacy agency for persons with developmental disabilities.

Cleve Howard - Miami Children's Hospital
3200 SW 60th Ct.
Ste. 103
Miami, FL 33155
Phone: 305-662-8290  
Contact: Cleve Howard
Opthamologist who works with FAS

Florida Teratogen Information Service
University of Miami
P O Box 016820
Miami, FL 33101
Phone: (305) 243-6464  
Contact: Virginia Carver
vcarver@miami.edu
Provides information on teratogens for patients and health professionals.

Florida Teratogen Information Service
University of Florida Health Science
Box 100296
Gainesville, FL 32610-0296
Phone: 352-392-3050  Toll Free: (800) 392-3050
Contact: Donna Poynor
Provides information on teratogens to health professionals.

Prevention Programs, including Treatment for Women
 
Community Drug and Alcohol Program of NW Florida
803 N. Palafox Street
Pensacola, FL 32501
Phone: (850) 434-2724  Toll Free: (888) 994-9944
http://www.cdac.info/default.htm
CADC provides two programs for women: Women's Intervention Services and Education (WISE) and Women's Transitional Center (WTC). Both programs provide intensive case management, prenatal care, assistance with affordable drug-free housing, employment training, counseling and support activities. WISE and WTC help these women learn how to live substance-free lives, and provide them with help to better deal with parenting, finances and personal problems.

Florida Family Health Program
Bin A 13, 2020 Capital Circle S E
Tallahassee, FL 32399-1723
Contact: Trisha Mann
Substance-abusing pregnant women are given priority for treatment services in Florida.

Treatment Services for Affected Individuals
 
Double ARC (Applied Research and Collaboration for children affected by At-Risk Conditions)
4920 Brentwood Avenue
Jacksonville, FL 32206
Phone: 904-765-6522   Fax: 904-765-9486  
Contact: Dianne Rumschlag
drumschlag@cxp.com
This group is an extension of the Sisters of Notre Dame organization which is active in Toledo, Ohio. Presents workshops for educators, families and social service providers.

Florida Children's Medical Services
1311 Winewood Boulevard
Tallahassee, FL 32301
Phone: 850-245-4200  
Contact: Eric Handler
FAS is one of the so-called covered conditions to obtain health care in Florida (this is for low-income patients).

Community Support
 
Zero Exposure
The Healthy Start Coalition of Hillsborough County, Inc.
3902 West Henderson Boulevard Suite 205
Tampa, FL 33629
Phone: (813) 233-2800  
Contact: Lisa Colen , MHA ,  Program Director
http://www.zeroexposure.org/index.cfm
The Zero Exposure Project works to ensure that every child is born substance free and lives in a family that promotes healthy growth and development. They distribute information on healthy pregnancy and FASD and provide referrals to substance abuse treatment and other health services in the Tampa Bay area.

Statewide Services
 
Florida State FASD Coordinator
Florida Department of Health
4025 Esplanade Way, Room 125H
Tallahassee, FL 32399
Phone: 850-245-4444 ex  Fax: 850-245-4047  
Contact: Felisha Dickey, M.S.W., M.P.A.
Felisha_Dickey@doh.state.fl.us


Copyright 2001-2004 National Organization on Fetal Alcohol Syndrome