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BGCenter for Cognitive - Developmental Assessment and Remediation
13 S Van Dyke Avenue
Suffern, NY 10901
Phone: 845-357-2512 Fax: 845-369-6830
Contact: Boris Gindis, Ph.D., Psychologist
gindis@bgcenter.com
www.bgcenter.com
International adoption medical and developmental consultations are available (fees are charged). Consults with Families for Russian-Ukrainian Adoption/FRUA and also with the Parent Network of New York.
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Chautauqua Alcoholism and Substance Abuse Council
2-6 East 2nd Street
Fenton Building, Suite 405
Jamestown, NY 14701
Phone: 716-664-3608
info@casacweb.org
www.casacweb.org
ProvideS education, screening, information and referral to individuals as well as education and training for professionals.
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Cindy Whitcomb
245 East Main Street
Victor, NY 14564
Phone: 585-924-2444
tctwhit@juno.com
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Erie County Council for the Prevention of Alcohol & Substance Abuse: Fetal Alcohol and Drug Effects Program
Western NY Family Support Group
1625 Hertel Avenue
Buffalo, NY 14216
Phone: 716-831-2298
Contact: Helen Weinstein
helenw@eccpasa.info
http://www.eccpasa.info/fade.htm
Member of SAMHSA's Partnership to Prevent FASD. The Program offers a positive approach to meeting the challenges of prenatal exposure to alcohol and other drugs through: Prevention, Education, and Awareness. Sponsors the Western NY Family FASD Support Group.
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Evan B. Donaldson Adoption Institute
525 Broadway
New York City, NY 10012
Phone: 212-925-4089
Contact: Madelyn Freundlich, Director
apertman@adoptioninstitute.org
www.adoptioninstitute.org
Specializes in training professionals in the adoption field; the training includes problems families may experience with alcohol-exposed children.
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International Pediatric Health Services, PLLC
151 East 62nd St.
Suite 1A
New York, NY 10021
Phone: 212-207-6666 Fax: 212-207-6665
Contact: Jane Aronson, D.O., Director
orphandoctor@aol.com
www.orphandoctor.com
Helps families with aspects of international adoption including adopting patients with alcohol related neurodevelopmental disorders.
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Lois Porlier
PO Box 275
East Berne, NY 12059
Phone: 518-872-9061
lporlier@aol.com
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NOFAS New York City
The Fetal Alcohol Syndrome Support Network of NYC and Long Island
33-33 164 Street
Flushing, NY 11358
Phone: 718-886-4076
Contact: Susan Rose, President
Smrose49@aol.com
http://www.fassn.org/index.htm
NOFAS NYC/FASSN is a non-profit network that provides information to families and health professionals about resources that are available for individuals in New York City and Long Island who have Fetal Alcohol Syndrome Disorder (FASD). FASSN is active in raising public awareness of FAS through public, private, government agencies, and the media in NYC and L.I. For the past five years, FASSN has been working to build a network of resources that includes support and education towards prevention and intervention in all the Boroughs.
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NOFAS Upstate NY
DePaul's National Council on Alcoholism and Drug Dependence-Rochester Area
1931 Buffalo Road
Rochester, NY 14624
Phone: (585) 719-3480 Fax: (585) 423-1908
Contact: Jennifer Faringer, MS.Ed., CPP, Director
jfaringer@depaul.org
www.nydas.org
Sponsors a monthly FASD parent support group.
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NYSARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
Phone: 518-439-8311 Fax: 518-439-1893
www.nysarc.org
A family-based organization working with and for people who have mental retardation or other developmental disablities.
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Post-Adoption Resource Center of the Capital Region
Parsons Child & Family Center
60 Academy Road
Albany, NY 12208
Phone: 518-426-2888 Fax: 518-447-5234
www.parsonscenter.org
Provides post-adoption services as well as FASD support groups for families.
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Pregnancy Risk Network
The Ferre Institute
124 Front Street
Binghamton, NY 13905
Phone: 716-684-2522 Toll Free: 800-724-2454
info@pregnancyrisknetwork.org
http://www.pregnancyrisknetwork.org/
The purpose of the Pregnancy Risk Network (PRN) is to increase healthy habits during pregnancy and decrease fetal risk. Through information, education, and research the staff of the PRN is able to assist women who are planning a pregnancy, pregnant or breast feeding and their healthcare providers review and assess exposures during pregnancy to determine potential fetal risk.
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The Children's Advisory Group
155 West 72nd Street
Suite 201
New York, NY 10023
Phone: 212-769-4644 x103
Contact: Susan Lugar, CSW
Educational Consultants for Special Education Students - private.
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Columbia-Presbyterian Medical Center
177 Fort Washington Avenue
Milstein 9 Garden N. Room 421
New York, NY 10032
Phone: 212-305-6731 Fax: 212-305-9058
Contact: Kwame Yebua, M.D., FAS Specialist
ka8@columbia.edu
Sees children only
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Golisano Children's Hospital at Strong
Department of Pediatrics
601 Elmwood Avenue, Box 777
Rochester, NY 14642
Phone: 585-275-7813 Fax: 585-275-3366
Contact: Sandra H Jee, MD, MPH
http://www.urmc.rochester.edu/gchas/INDEX.HTM
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Harlem Hospital
506 Lenox Avenue
New York, NY 10037
Phone: 212-939-3129
Contact: Stephen Nicholas, M.D., Chief of Pediatrics
swn2@columbia.edu
Accepts Medicaid
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Long Island Jewish-Schneiders Children's Hospital
400 Lakeville Road
Suite 260
New Hyde Park, NY 10040
Phone: 718-470-3510
Contact: Dr. Carmel Foley, Head, Division of Child Psychiatry & Adolescent Medicine
Medicaid accepted
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Mid-Hudson Family Health Institute - Child Neurology & Neurogenetics Clinic
279 Main Street
Suite 102
New Paltz, NY 12561
Phone: 845-255-2930
Contact: Dr. Joseph Higgins
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Montefiore Center for Congenital Disorders
Division of Genetics
3415 Bainbridge Avenue
Bronx, NY 10467
Phone: 718-741-2323
Contact: Robert Marion, M.D.; Paul Levy, M.D
plevy@montefiore.org
Note: These doctors see children, teens, and adults
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New York State Lab of Newborn Screening and Genetics Services
Wadsworth Center, Room E-299
Empire State Plaza
Albany, NY 12201-0509
Phone: 518-474-7148 Fax: 518-473-1733
Contact: Katherine B. Harris
kbh02@health.state.ny.us
Staff can provide referral information to clinical genetics centers.
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NYU Medical Center- Division of Pediatric Neurology
Bellevue Hospital Center
462 First Avenue
New York, NY 10016
Phone: (212) 263-6347
Contact: Sandra Forem, M.D., Irving Fish, MD
www.med.nyu.edu/neuro
forems01@popmail.med.nyu.edu
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Regional Medical Genetics Center, Inc.
19 Bradhurst Avenue
PO Box 287
Hawthorne, NY 10532
Phone: 914-593-8900 Fax: 914-593-8938
Contact: Lawrence Shapiro, M.D.
Provides information on teratogens for clients and health professionals in the 7 counties of the lower Hudson River Valley.
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Rose Kennedy Children's Evaluation and Rehabilitation Center (CERC)
Albert Einstein College of Medicine of Yeshiva University
1410 Pelham Parkway South
Bronx, NY 10461
Phone: 718-430-8500 Fax: 718-892-2296
Contact: Mireida Sanchez, Intake Coordinator
cerc@aecom.yu.edu
http://www.aecom.yu.edu/cerc/
Provides multidisciplinary evaluations and individualized therapeutic interventions to clients with a broad spectrum of neurodevelopmental and related disabilities, including FAS and ARND.
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University of Rochester School of Medicine- Division of Pediatric Genetics
601 Elmwood Avenue
Box 777
Rochester, NY 14642
Phone: 585-275-5857
Contact: George Segel, MD
george_segel@urmc.rochester.edu
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Women and Children's Hospital of Buffalo
219 Bryant Street
Buffalo, NY 14222
Contact: Luther K. Robinson, MD, Associate Professor of Pediatrics, Director, Special Diagnostic Clinic
lrobinson@upa.chob.edu
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Congenital Malformations Registry
547 River Street, Room 200
Troy, NY 12180-2216
Phone: 518-458-6249 Toll Free: 800-458-1148
Contact: Charlotte Druschel,k MD, MPH, Medical Director, Deborah Fox, MPH, Project Coordinator
cmd05@health.state.ny.us, djf03@health.state.ny.us
http://www.health.state.ny.us/nysdoh/cmr/cmrhome.htm
The Congenital Malformations Registry (CMR) of the New York State Department of Health administers a Population-Based Surveillance of Fetal Alcohol Syndrome in New York State. The registry
is a repository for case reports on children who are born or reside in New York State and are diagnosed before the age of two years with any structural, functional or biochemical abnormality determined genetically or induced during gestation and not due to birthing events.
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New York Commission on Quality of Care for the Mentally Disabled
401 State Street
Schenectady, NY 12305
Phone: 518-381-7098 Fax: 518-381-7095 Toll Free: 800-624-4143
www.cgc.state.ny.us
Protection and advocacy agency for persons with developmental disabilities.
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NYS Congenital Malformations Registry
Room 200
Troy, NY 12180
Phone: 518-458-6249 Fax: 518-402-7990
Contact: Charlotte M Druschel, 547 River Street
http://www.health.state.ny.us/nysdoh/cmr/cmrhome.htm
Maintains NYS Birth Defects Registry for up to age 2. Includes statistics on FAS.
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Pius X11 Youth and Family Services- Foster Boarding Home Program/Adoptions
188 W 230th Street
Bronx , NY 10463
Phone: 718-562-7855 Fax: 718-562-7855
Contact: Robert Martinez , Program Director
Pius X11 Youth and Family Services also has 2 residential treatment centers for New Yorkers, ages 12-17, who have conduct disorders. For information, call 914-469-2121 (Chester, NY) and 914-876-4084 (Rhinecliff, NY) Camps also available.
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North Country Prenatal/Perinatal Council, Inc
200 Washington Street, Suite 300
Watertown, NY 13601
Phone: 315-788-8533 Toll Free: 800-279-8679
http://www.ncppcinc.org/index.html
The North Country Prenatal/Perinatal Council, Inc. (NCPPC) was established in June 1988 as a non-profit regional coordinating council dedicated to improving outcomes for maternal, infant, and family health in Jefferson, Lewis, and St. Lawrence Counties. Provides case management services for high risk women and children.
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NYS Office of Alcoholism & Substance Abuse Services (OASAS)
1450 Western Avenue
Albany, NY 12203-3526
Phone: 518-485-1768 Fax: 518-485-6014 Toll Free: 800-522-5353
Contact: Shari Noonan, Acting Commissioner
www.oasas.state.ny.us
Provides information, resources and trainings on FASD, including web-based information and a lending video library with videos on FASD. Toll-free hotline can make referrals for adults & children to alcoholism & substance abuse prevention and treatment programs across NYS.
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PEDECS - University of Rochester Medical Center - Department of Obstetrics and Gynecology
601 Elmwood Avenue
Rochester, NY 14642-8668
Phone: 585-275-3638
Contact: Richard Miller, M.D.
PEDECS - can provide teratogen information for patients and health professionals in New York State's Finger Lakes region.
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Developmental Pediatrics
7B Johnson Road
Latham, NY 12110
Phone: 518-782-7733
Contact: Dr. Anthony Malone
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North Shore University Hospital
Department of Neurology
300 Community Drive
Manhasset, NY 11030
Phone: 516-562-3054
Neuropsychological Services including evaluations for children and adults. Medicaid accepted.
Dr. Barbara Wilson, Dr. Paul Mattis, Dr. Prena Shah, Dr. William Matos
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Steven Alter, PhD
110-45 Queens Blvd.
Suite A2
Forest Hills, NY 11375
Phone: 718-261-3363
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Vincent Guarrera, DSW, LCSW
20 Canterbury Road
Suite 2000
Great Neck, NY 11021
Phone: 516-829-9362
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Women and Childrens's Hospital of Buffalo
936 Delaware Avenue
Buffalo, NY 14209
Contact: Louise Ferretti, Psychologist
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Growing Up Healthy Hotline
NY
Toll Free: 1-800-522-5006
Information about healthcare, nutrition and other health & human services, including FASD. Operates 24/7 in English, Spanish and other languages.
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NYS Developmental Disabilities Planning Council
155 Washington Avenue
2nd Floor
Albany, NY 12210
Phone: 518-486-7505 Fax: 518-402-3505
Contact: Sheila M Carey, Executive Director
www.ddpc.state.ny.us
This program help New Yorkers with developmental disablilities receive the necesary services and support.
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NYS Early Intervention Program
Corning Tower Building
Room 28
Albany, NY 12237
Phone: 518-473-7016
Contact: Donna M Noyes, PhD, Director
eip@health.state.ny.us
Can provide contact information on local early intervention services to infants and toddlers with disablilities and their families.
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NYS Office of Alcoholism & Substance Abuse Services FASD Initiative
1450 Western Avenue
Albany, NY 12203
Phone: 518-457-6206
Contact: Margo Singer, FASD State Coordinator
margosinger@oasas.state.ny.us
http://www.oasas.state.ny.us/fasd/index.cfm
New York States project is aimed at reducing the number of FASD related births by eliminating alcohol consumption by women of childbearing age and pregnant women. The New York State Office of Alcoholism & Substance Abuse Services (OASAS) plans to conduct a multi-year, statewide effort to prevent Fetal Alcohol Spectrum Disorders (FASD) through: (1) increased outreach, identification and referral of at-risk pregnant women and women of childbearing years (2) training on FASD for health care professionals working with at-risk women; and (3) increased awareness by women of childbearing years about the dangers of alcohol consumption during pregnancy
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NYS Office of Mental Retardation & Developmental Disabilities
Institute for Basic Research in Developmental Disabilities
1050 Forest Hill Road
Staten Island, NY 10314
Phone: 718-494-0600
http://www.omr.state.ny.us/
Conducts basic & clinical research to further the prevention, early detection, and treatment of mental retardation & developmental disabilities.
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