http://www.nofas.org/news/after-learning-of-their-sons-fas-diagnosis-a-family-jumps-into-action-for-the-cause/ National Organization on Fetal Alcohol Syndrome Mon, 25 Mar 2013 08:06:08 +0000 hourly 1 http://wordpress.org/?v=3.5.1 http://www.nofas.org/news/after-learning-of-their-sons-fas-diagnosis-a-family-jumps-into-action-for-the-cause/#comment-18992 Patti Mon, 04 Feb 2013 21:18:59 +0000 http://www.nofas.org/?p=2543#comment-18992 How awesome! And how brave. I am a grandmother with twin grandchildren affected by FAS. My grandson has fused kidneys (they each have their own emptying system!) and he has had two surgeries dealing with his scrotum and a cyst on his neck. My granddaughter has been diagnosed with chronic benign neurtopenia and has some issues with passion out and is seeing a specialist this month with the results of an EEG. My grandson is starting to act out with impulsive behavior and his parents are seeing this as rebellion – still somewhat in denial to FAS or FASD. We are at a loss of where to get help. I have ordered some books, videos, brochures which I will be sharing with my son and mother to my grandchildren. I have also printed of hundreds of educational information. I need someone to talk to to guide me. I think I am going to be the proactive person, working toward educating my family in FAS. I won’t stop Could you reply with some resource phone numbers? Thank you. My grandchildren are 26 months old.

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