Fetal Alcohol Syndrome, mental retardation at NOFAS
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National Organization on Fetal Alcohol Syndrome, Protecting children and families by fighting the leading known cause of mental retardation and birth defects
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“I've worked with poor families and the homeless for 17 years, first in Boston and now in Washington D.C. I've worked with people, some of whom had extensive criminal records, that weren't diagnosed with fetal alcohol syndrome until well into their adult years. All of their lives they have been labeled difficult, lazy, and manipulative. I've worked with women who reacted in horror and disbelief when their child was diagnosed with FAS, saying 'But I didn't drink that much.'”
Katy Gingles

2006 Affiliate Network

NOFAS is pleased to announce that the 2006 Affiliate Network application process is now open. NOFAS is grateful to several groups across the country that have expressed an interest in the NOFAS Affiliate Network and to all those that have been successful in their efforts to prevent FASD and care for those living with the disability. FASD is a tragic, unnecessary and pervasive disorder that demands greater public and private attention and investment. NOFAS believes that the best way—likely the only way—to fulfill the promise of prevention and truly meet the needs of people with FASD and their caregivers is to work collectively.

The NOFAS Affiliate Network was established a few years back to open permanent lines of communication among FASD colleagues and organizations, share resources, unify core values and messages, and turn up the volume on the appeal for attention and resources. NOFAS’ current affiliates represent families, educators, social workers, justice personnel, and caregivers. We are pleased to be working with a great bunch of impassioned individuals and groups. For more information on the NOFAS Affiliate Network, please visit: http://www.nofas.org/about/affiliate.aspx

There are numerous recent examples of success among other public health issues when like-minded groups collaborate. In the past decade, prematurity has dramatically decreased due to the leadership of the March of Dimes, and Spina bifida has been on the decline in response to a national push for women to take folic acid before and during pregnancy. At the same time those in the FASD community have been unable to broadly overcome public misconceptions about alcohol and pregnancy and a lack of resources. Fortunately, the FASD field consists of many dedicated and effective advocates and organizations. By working together in pursuit of a few key goals our achievements can grow exponentially. NOFAS believes that networks are the most effective way to disseminate a message when faced with limited resources, and to be taken seriously by the medical, education, and justice communities, not to mention the general public.

NOFAS would like to establish formal relationships with groups within the United States as well as internationally. We would like to expand our network and unify the voices of all those working toward addressing this issue. If you are interested in becoming a NOFAS affiliate, please refer to the application materials below or contact Tom Donaldson for further information.

2006 NOFAS Affiliate Network Application

2006 NOFAS Affiliate Network Guidelines

Credit Card Authorization Form

Copyright 2001-2004 National Organization on Fetal Alcohol Syndrome