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NOFAS has nearly a full week of activities scheduled in Washington, D.C. for the first full week of June. Beginning Monday evening, June 5, NOFAS will host a reception for affiliates and advocates participating in this year’s activities.
The NOFAS Affiliate Summit will convene Tuesday morning among the eight original affiliates and as many as fifteen additional delegates representing organizations joining the network this spring.
“NOFAS is now accepting applications from organizations seeking to join the NOFAS affiliate network,” said program coordinator Nav Dayanand, “we anticipate bringing on several new groups and plan to get to work with them right away, starting with the June summit.”
The Third Annual Hill Day begins with an orientation on Tuesday afternoon, June 6, with Congressional visits slated for both Wednesday and Thursday. NOFAS is expecting as many as 100 constituents to visit lawmakers to promote this year’s FASD agenda.
“To realize our broad goals on Capitol Hill of increased attention and investment for FASD, policy makers must hear directly from families in need. Our collective voice is rising and we’re making incremental progress thanks to the courageous families living with the condition,” said Lindsay Daschle, director of NOFAS public affairs.
For fifteen years NOFAS has honored the heroes in the fight against FASD including elected officials, scientists, advocates and many others at the Leadership Awards Benefit. The Wednesday evening, June 7, event at the National Guard Association Hall of States on Capitol Hill is also the most visible and important annual fundraising event for NOFAS. Former Senator Tom Daschle and Linda Hall Daschle and Senators Lisa Murkowski, Chris Dodd, John McCain and Byron Dorgan are among this year’s special guests.
Cheri Scott, an Alaskan advocate and parent will receive this year’s Leadership Award for her incredible contribution to addressing FASD in her state. Dr. Sterling Clarren will receive an award for his contributions to the scientific and research community.
Describing the fundraising challenge, NOFAS president Tom Donaldson added, “NOFAS is extremely fortunate to have dedicated board members who go all out to raise money. Fortunately, when people and corporations understand how pervasive FASD is and how it is entirely preventable they are often compelled to help. Still, the challenge is enormous, and to continue our progress we need new donors more than ever.”
For more information on benefit sponsorships contact Tom Donaldson, donaldson@nofas.org
For more on Hill Day contact Lindsay Daschle, daschle@nofas.org.
To register for hill day, please contact Nav Dayanand with your name, email address and postal zip code. He can be reached through phone at: (202) 785-4585; fax (202) 466-6456;or email at dayanand@nofas.org. Please include how many friends/family members will be attending and their names. Make sure to contact us soon so we can arrange your meetings with the appropriate Senator and/or Representative!
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