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“Finally, I found a checklist for fetal alcohol syndrome on the internet, checked off most of the checks, and took it in to the doctor. He said, 'Oh, you might be right.' So we went to Children's Hospital, got a diagnosis for my daughter, and it became clear that a lot more needed to be done in the medical profession to be able to identify it. Her doctor had been trained and knew about FAS, but couldn't recognize it since he hadn't come across it that much in his profession.”
Steven Klene

Suggested Reading By and For Families Dealing with FASD

AL-ANON Family Groups. (1994). From Survival to Recovery: Growing Up in an Alcoholic Home. New York, NY: AL-ANON Family Groups

Alcoholics Anonymous World Services. (1975). Living Sober. New York, NY: Alcoholics Anonymous World Services.

Barth, R. P., Brodinsky, D., & Freundlich, M. (2000). Adoption and Prenatal Alcohol and Drug Exposure. Washington, DC: Child Welfare League of America, Inc.

Bluegrass Prevention Center, The Sycamore Project: Kentucky's Prevention Enhancement Site For Fetal Alcohol Spectrum Disorders. (2009). All About Me: Brain Differences. Richmond, KY: Bluegrass Prevention Center.

Bluegrass Prevention Center, The Sycamore Project: Kentucky's Prevention Enhancement Site For Fetal Alcohol Spectrum Disorders. (2009). All About Me: FASD. Richmond, KY: Bluegrass Prevention Center.

Bobula, J., & Bobula, K. (2009). Forgetful Frankie: The World's Greatest Rock Skipper. Canada: Wildberry Productions.

Centers for Disease Control. (2004). Fetal Alcohol Syndrome: Guidelines for Referral and Diagnosis. Washington, DC: U.S. Department of Health and Human Services.

Chavez, J., & Chavez, E. (1993). The ABC's of Fetal Alcohol Syndrome/Effect: A Handbook for Middle - Junior - Senior High School Teachers. Lewiston, ID: Chavez.

Children’s Research Triangle. (2008). FASD Across the Span of Childhood: A Handbook for Parents and Providers. Chicago, IL: NTI Upstream.

Cole, C.K., M.A., Coles, C.D., Ph.D., Kanne Poulsen, M., Ph.D., & Smith, G.H., Ed.S. (1995). Children, Families, and Substance Abuse: Challenges for Changing Educational and Social Outcomes. Baltimore, MD: Paul H. Brookes Publishing Company.

Conry, J., Ph.D., & Fast, D.K., M.D., Ph.D. (2000). Fetal Alcohol Syndrome and the Criminal Justice System. Vancouver, Canada: British Columbia Fetal Alcohol Syndrome Resource Society.

Crowe, J.A. (2009). The Fatal Link. Denver, CO: Outskirts Press, Inc.

Davis, D. (1994). Reaching Out to Children with FAS/FAE. West Nyack, NY: The Center for Applied Research in Education.

Dorris, M. (1989). The Broken Cord. New York, NY: Harper Perennial.

Double ARC. (2004). Triumph: Through the Challenges of Fetal Alcohol Syndrome. Findlay, OH: Kennedy Printing.

Falkner, L.J. (2002). I Would Be Loved. College Station, TX: Virtualbookworm.com Publishing, Inc.

HaysKids. (2009). Pathways to Success: A Fetal Alcohol Workbook. Cook, MN: Hays.

HaysKids, & Payne, W. (Producer). (2005). Pathways to Understanding: Raising Kids with Fetal Alcohol Spectrum Disorder. [Seminar]  New York, NY: Follow Productions.

Irene, M. (2004). Fetal Alcohol. Bloomington, IN: AuthorHouse.

Kleinfeld, J., & Wescott. S. (1993). Fantastic Antone Succeeds. Fairbanks, AK: University of Alaska Press.

Kleinfeld, J. (2000). Fantastic Antone Grows Up. Fairbanks, AK: University of Alaska Press.

Kulp, J. (2002). Our FAScinating Journey. Brooklyn Park, MN: Better Endings New Beginnings.

Kulp, J. (2008). The Whitest Wall. Brooklyn Park, MN: Better Endings New Beginnings.

Kulp, L. (2000). The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects. Brooklyn Park, MN: Better Endings New Beginnings.

Lesley, C. (2000). Storm Riders. New York, NY: Picador USA.

Malbin, D., M.S.W. (2002). Trying Differently Rather Than Harder. Portland, OR: Tectrice, Inc.

McCreight, B. (1997). Recognizing and Managing Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook. Washington, DC: CWLA Press.

Minnesota Department of Health. (1999). Guidelines of Care for Children with Special Health Care Needs: Fetal Alcohol Syndrome and Fetal Alcohol Effects. St. Paul, MN: Minnesota Department of Health.

Morse, B.A., Ph.D., & Weiner, L., M.P.H. (1993). FAS: Parent and Child. Boston, MA: Fetal Alcohol Education Program.

National Institute on Alcohol Abuse and Alcoholism. (1999). Identification and Care of Fetal Alcohol-Exposed Children. Bethesda, MD: National Institutes of Health.

National Institute on Alcohol Abuse and Alcoholism. (1999). Identification of At-Risk Drinking and Intervention with Women of Childbearing Age. Bethesda, MD: National Institutes of Health.

National Organization on Fetal Alcohol Syndrome. (2007). Making a Difference: Fetal Alcohol Spectrum Disorders Public Awareness Guide. Washington, DC: National Organization on Fetal Alcohol Syndrome.

National Organization on Fetal Alcohol Syndrome. (2006). Karli and the Star of the Week. Washington, DC: National Organization on Fetal Alcohol Syndrome.

National Organization on Fetal Alcohol Syndrome. (2004). Fetal Alcohol Spectrum Disorders: An Overview. Washington, DC: National Organization on Fetal Alcohol Syndrome.

National Organisation on Fetal Alcohol Syndrome-United Kingdom. (2006). A Child for Life. London, England: National Organisation on Fetal Alcohol Syndrome-United Kingdom

Neafcy, S. J. (2008). The Long Way to Simple: Fetal Alcohol Spectrum Disorders. Brooklyn Park, MN: Better Endings New Beginnings.

Norgard, K. (2006). Hard to Place: A Crime of Alcohol. Tucson, AZ: Recovery Resources Press.

Streissguth, Ann. (1997). Fetal Alcohol Syndrome: A Guide for Families and Communities. Baltimore, MD: Paul H. Brookes Publishing Company.

Streissguth, A., & Kanter, J. (1997). The Challenge of Fetal Alcohol Syndrome: Overcoming Secondary Disabilities. Seattle, WA: University of Washington Press.

Tavenner Mitchell, K. (2002). Fetal Alcohol Syndrome: Practical Suggestions and Support for Families and Caregivers. Washington, DC: National Organization on Fetal Alcohol Syndrome.

U.S. Department of Health and Human Services. (2009). Reducing Alcohol-Exposed Pregnancies: A Report on the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. Washington, DC: U.S. Department of Health and Human Services.

U.S. Department of Health and Human Services. (2009). A Call to Action: Advancing Essential Services and Research on Fetal Alcohol Spectrum Disorders, A Report of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. Washington, DC: U.S. Department of Health and Human Services.

Substance Abuse and Mental Health Services Administration. (2006). Recovering Hope: Mothers Speak Out about Fetal Alcohol Spectrum Disorders. Washington, DC: U.S. Department of Health and Human Services.

University of New Mexico Department of Pediatrics, Fetal Alcohol Syndrome Growth Survey. (1999). Fetal Alcohol Syndrome: A Handbook for Parents and Caregivers. Albuquerque, NM: The University of New Mexico.

University of Washington Fetal Alcohol and Drug Unit. (1992). Educating Children Prenatally Exposed to Alcohol and Other Drugs. Seattle, WA: University of Washington Press.

Winokur, M.R. (2009). My Invisible World: Life with My Brother, His Disability, and His Service Dog. Brooklyn Park, MN: Better Endings New Beginnings.Yurcek, A. (2006). Tiny Titan. Brooklyn Park, MN: Better Endings New Beginnings

Copyright 2001-2004 National Organization on Fetal Alcohol Syndrome