Author Archive
Taylor A.
Taylor A. is a 17 year old teenager with FASD, who was born in Vermont in June 1992. He was put up for adoption by his birth mother, who was an alcoholic, and was adopted the next day by his current parents. Unlike others with an FASD, he does not have any of the facial characteristics that are attributed to the disorder. Others sometimes find it hard to believe that he has a disability because ...
Rob W.
In 1973, Rob W. was the first infant diagnosed with FAS in the United States. Having a diagnosis at birth has been extremely helpful to both Rob and his parents. Although there were no conferences, books or videos on FAS in 1973, having the diagnosis helped his parents think and parent differently. As Rob grew older he wanted to become part of the solution to the FASD puzzle. He has been involved in the areas of ...
NOFAS Response to Media Coverage of New Research
Late last week, five papers from the Lifestyle During Pregnancy Study* were published online in BJOG: An International Journal of Obstetrics and Gynaecology. Unfortunately, findings from the papers have been incorrectly and irresponsibly reported by some to say that drinking low to moderate quantities of alcohol during pregnancy is completely safe and without risk. Researchers conducted tests on a group of 5-year-old children whose mothers consumed low to moderate amounts of alcohol in pregnancy. The papers ...
Dr. Mary DeJoseph
Dr. Mary DeJoseph integrates her professional and personal experience with prenatal alcohol exposure to educate as many health care and human service professionals as she possibly can. Her professional, clinical experience with alcoholism and high risk alcohol use began in 1988 when she became certified to practice Family Medicine in PA. She continues as adjunct faculty at the Philadelphia College of Osteopathic Medicine and is active ...
Morgan Fawcett
Morgan Fawcett is a young Alaska Native living with FASD. He is Tlingit and of the Eagle Moiety. He is Kaagwaantaan from the Box House. His Tlingit name is Sheens, and his English name is Morgan Fawcett. Four years ago he founded One Heart Creations (http://morganfawcett.vpweb.com/) to raise awareness for FAS/FASD. He started an FAS/FASD awareness week encompassing September 9 (FAS/FASD International Awareness Day). This is ...
R. Louise Floyd, RN, DSN
Dr. Louise Floyd is a Supervisory Behavioral Scientist and Team Leader of the Fetal Alcohol Syndrome (FAS) Prevention Team, Prevention Research Branch, Division of Birth Defects and Developmental Disabilities, National Center for Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention. She began her career in public health at the Georgia Department of Human Resources where she worked prior to joining the Centers for Disease ...
Karli Schrider
Karli Schrider was named Point of Light number 1332 in 1999 by former President George H. W. Bush who personally presented her with the Daily Point of Light Award for her contribution to the prevention of FASD. Former Senator Tom Daschle was so moved after he met Karli that he shared her story on the Senate floor when he introduced FAS legislation. Karli enjoys art and created ...
Grace Chang, MD
Dr. Grace Chang is Professor of Psychiatry at Harvard Medical School. She has had a longstanding clinical research interest in substance use during pregnancy. Her work in this field began while she was a junior faculty member at the Yale University School of Medicine and created a program for pregnant women dependent on opiates that sought to reduce every possible barrier to their treatment. In 1991, Dr. ...
The Allen Family
Taylor was born in at just over 4 lbs with both eye and ear deformities that were corrected by surgery by age 2. It was fortunate that his birth mother gave a full and honest history after his birth, admitting to drinking a 6 pack of beer most nights with occasional binge drinking and hard liquor throughout her pregnancy. Cathy and Mark Allen adopted Taylor when he ...
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NOFAS Press Conference: “FASD and the Criminal Justice System”
Los Angeles County Deputy Public Defender Billy Edwards headlined a recent NOFAS press conference highlighting the many facets of Fetal Alcohol Spectrum Disorders and the criminal justice system, and how the topic came to be featured this year in a double volume of theJournal of Psychiatry and the Law. Watch the full press conference. Watch video of individual speakers William J. Edwards, JD, Deputy Public Defender, Los Angeles County Public Defenders ...
About NOFAS
The National Organization on Fetal Alcohol Syndrome (NOFAS) is the leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community. Founded in 1990, NOFAS is the only international non-profit organization committed solely to FASD primary prevention, advocacy and support. NOFAS seeks to create a global community free of alcohol-exposed pregnancies and a society supportive of individuals already living with FASD. NOFAS effectively increases public awareness and mobilizes grassroots action in diverse communities and represents ...
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