The NOFAS Affiliate Network was established in 2002 to open lines of communication among FASD colleagues and organizations, share resources, unify core values, priorities, and messages, and increase advocacy for FASD recognition and investment. It is the largest and longest standing international coalition of FASD organizations.
The goal of the Network is to unite organizations in an international coalition for the purpose of preventing FASD and meeting the needs of people living with the disorders, while each member organization maintains its identity and autonomy.
Video featuring representatives of the NOFAS Affiliate Network
Join the Affiliate Network
Requirements for joining the network and the coalition’s objectives and benefits can be found in the 2015 Affiliate Network Guidelines above. If your organization is addressing FASD and is interested in joining the Network, please download the guidelines and application and contact Tom Donaldson, (202) 785-4585.
Affiliate Network Executive Council
Leigh Tenkku-Lepper, PhD, NOFAS-Missouri
Sr. Suzette Fisher, Double ARC
Eileen Bisgard, NOFAS Colorado
Ajeet Charate, NOFAS Illinois-Trinity Services, Inc.
Peggy Combs-Way, SoCal NOFAS
Amy Hendricks, North Carolina Teratogen Information Service and Fetal Alcohol Prevention Program
Jerome Romero, Fetal Alcohol Syndrome Prevention Program at the University of New Mexico
Center on Alcoholism, Substance Abuse and Addictions
Sue Lind, Michigan Coalition for Fetal Alcohol Resources, Education, and Support – MCFARES
- NOFAS hosts an affiliate conference call on the second Wednesday of each month at 2:00 P.M. EST.
- The 2015 NOFAS Affiliate Summit was held June 15-17 in Washington, D.C.
Affiliate Network Agenda
New priorities were developed at the 2015 Affiliate Summit and will be posted soon.
The Network continues to support the inclusion of Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE) in the Diagnostic and Statistical Manual of Mental Health Disorders (DSM-5), published by the American Psychiatric Association in 2013. Although identifying FAS and other conditions under the FASD umbrella is primarily a medical diagnosis, long-established research confirms that mental health and treatable behavioral disorders are common among individuals prenatally exposed to alcohol. ND-PAE is in the DSM-5 in Section III with other conditions that require further research. Full inclusion could lead to standardized diagnosis, treatment, and reimbursement for practitioners serving the needs of persons with FASD, while maintaining the primary diagnosis as a medical condition.
In addition to its affiliates, NOFAS also works with other partner organizations to address FASD.