The largest and longest standing coalition of FASD organizations, the NOFAS Affiliate Network was established in 2002 to open permanent lines of communication among FASD colleagues and organizations, share resources, unify core values, priorities, and messages, and turn up the volume on the appeal for attention and investment. The goal of the NOFAS Affiliate Network is to unite FASD organizations in an international coalition for the purpose of preventing FASD and meeting the needs of people living with the disorders, while each member organization maintains its identity and autonomy. Today, the network consists of over 40 member organizations.
If you are seeking information about alcohol and pregnancy or FASD, contact NOFAS or the organization below closest to you. Affiliate organizations are usually the most familiar with FASD resources in their state or location, although you are encouraged to contact other organizations as several have useful materials as well as programs and activities with a regional or national scope.
NOFAS also has a list of partner organizations.
NOFAS Affiliate Network
Minnesota Organization on Fetal Alcohol Syndrome - Charter Member
Join the Affiliate Network
Review the network objectives and benefits to member organizations below and apply to join the network today!
- Share information and resources
- Build the capacity of the FASD constituency and increase advocacy
- Set common goals and messages
- Seek consensus on issues within the FASD arena
- Collaborate on a range of public health and advocacy programs and services
- Leverage resources
NOFAS and each affiliate organization respects:
- The identity, culture, policies, and traditions of each affiliated organization
- The image, reputation, and public standing of each affiliated organization
- FASD birth mothers and individuals with FASD and their families/caregivers, and strives to overcome the stigma and boundaries associated with the disorder
Benefits to Affiliates
- Free and discounted materials
- Free or discounted attendance to NOFAS events and activities, including conferences, benefits, and briefings
- Technical assistance, consisting of both strategic advice and sample materials on topics such as developing a logic model (goal, objectives, outcomes), incorporation and securing non-profit status, grassroots advocacy, fundraising and proposal development, public awareness strategies, materials and website development, nonprofit governance and administration, etc.
- Trip to the annual affiliate summit
- Free monthly program conference call
- Access to the Foundation Center online
- Micro-grant opportunities
- Promotion of your organization and programs
- Members-only Facebook page
- Enhanced visibility
Any incorporated 501 (c)(3) non-profit entity with a focus on FASD or other compatible mission may apply. American Indian and Alaska Native Tribes and University programs are also eligible.
If interested in joining the NOFAS Affiliate Network, please download the guidelines and application below and contact Tom Donaldson, (202) 785-4585.
- NOFAS hosts an affiliate conference call on the second Wednesday of each month at 2:00 P.M. EST.
- The 2014 NOFAS Affiliate Summit will be held June 9-12 in Washington, D.C.
Affiliate Network Agenda
Current priorities involve supporting the inclusion of Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE) in the Diagnostic and Statistical Manual of Mental Health Disorders (DSM-5), published by the American Psychiatric Association in 2013. Although identifying FAS and other conditions under the FASD umbrella is primarily a medical diagnosis, long-established research confirms that mental health and treatable behavioral disorders are common among individuals with FAS. ND-PAE is in the DSM-5 in Section III with other conditions that require further research. Full inclusion could lead to standardized diagnosis, treatment, and reimbursement for practitioners serving the needs of persons with FASD, while maintaining the primary diagnosis as a medical condition.
NOFAS Affiliate Network Executive Committee
Sr. Suzette Fisher, Double ARC
Leigh Tenkku, PhD, NOFAS Missouri
Eileen Bisgard, NOFAS Colorado
Ajeet Charate, Trinity Serivces, Inc.
Peggy Combs-Way, SoCal NOFAS
Amy Hendricks, North Carolina Teratogen Information Service and Fetal Alcohol Prevention Program