As the largest and longest standing coalition of FASD organizations, the NOFAS Affiliate Network was established in 2002 to open permanent lines of communication among FASD colleagues and organizations, share resources, unify core values, priorities, and messages, and increase advocacy towards FASD attention and investment.
The goal of the NOFAS Affiliate Network is to unite FASD organizations in an international coalition for the purpose of preventing FASD and meeting the needs of people living with the disorders, while each member organization maintains its identity and autonomy.
Today, the network consists of over 40 member organizations.
Watch this video featuring many representatives of the NOFAS Affiliate Network:
If you are seeking information about alcohol and pregnancy or FASD, contact NOFAS or the organization closest to you.
Affiliate organizations are usually the most familiar with FASD resources in their state or location, although you are encouraged to contact other organizations as several have useful materials as well as programs and activities with a regional or national scope.
NOFAS also has a list of partner organizations.
NOFAS Affiliate Network
- Minnesota Organization on Fetal Alcohol Syndrome – Charter Member
- Action: FASD (North Dakota)
- American Academy of Pediatrics – Kansas Chapter
- Beginnings of San Luis Obispo County (California)
- Bluegrass Regional Prevention Center (Kentucky)
- Center for Humanistic Change (Pennsylvania)
- Double ARC (NOFAS Ohio)
- Extol Charitable Foundation (New Mexico)
- Family Empowerment Network (FEN) (Wisconsin)
- FASD Communities (National)
- FASworld Canada
- Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc. (Oregon)
- Fetal Alcohol Syndrome Prevention Program at the University of New Mexico
Center on Alcoholism, Substance Abuse and Addictions
- Michigan Coalition for Fetal Alcohol Resources, Education, and Support – MCFARES (Michigan)
- National Council on Alcoholism and Drug Dependence – Rochester Area (New York)
- National Organisation for Fetal Alcohol Syndrome and Related Disorders (NOFASARD – Australia)
- North Carolina Teratogen Information Service and Fetal Alcohol Prevention Program
- NOFAS United Kingdom
- NOFAS Alabama
- NOFAS Alaska
- NOFAS Central Indiana
- NOFAS Colorado
- NOFAS Connecticut
- NOFAS Georgia
- NOFAS Illinois
- NOFAS Indiana
- NOFAS MidSouth
- NOFAS New Hampshire
- NOFAS New Jersey
- NOFAS Washington
- ORCHIDS FASD Services, Inc. (Wisconsin)
- Russell Family Fetal Alcohol Disorders Association (Australia)
- SoCal NOFAS (Southern California NOFAS)
- Stone Soup Group (Alaska)
- Texas Office for the Prevention of Developmental Disabilities
- The Fetal Alcohol Syndrome Support Network of NYC and Long Island, Inc.
- The Papillion Center for FASD (Tennessee)
- University of South Dakota Center for Disabilities – NOFAS South Dakota
- Ukraine Works Ltd. (Virginia and Ukraine)
- Utah Fetal Alcohol Coalition
Join the Affiliate Network
Review the network objectives and benefits to member organizations below and apply to join the network today!
- Share information and resources
- Build the capacity of the FASD constituency and increase advocacy
- Set common goals and messages
- Seek consensus on issues within the FASD community
- Collaborate on a range of public health and advocacy programs and services
- Leverage resources
NOFAS and each affiliate organization respects:
- The identity, culture, policies, and traditions of each affiliated organization
- The image, reputation, and public standing of each affiliated organization
- FASD birth mothers and individuals with FASD and their families/caregivers, and strives to overcome the stigma and boundaries associated with the disorder
Benefits to Affiliates
- Free and discounted materials
- Free or discounted attendance to NOFAS events and activities, including conferences, benefits, and briefings
- Technical assistance, consisting of both strategic advice and sample materials on topics such as developing a logic model (goal, objectives, outcomes), incorporation and securing non-profit status, grassroots advocacy, fundraising and proposal development, public awareness strategies, materials and website development, nonprofit governance and administration, etc.
- Trip to the annual affiliate summit
- Free monthly program conference call
- Access to the Foundation Center online
- Micro-grant opportunities
- Promotion of your organization and programs
- Members-only Facebook page
- Enhanced visibility
Any incorporated 501 (c)(3) non-profit entity with a focus on FASD or other compatible mission may apply. American Indian and Alaska Native Tribes and University programs are also eligible.
If interested in joining the NOFAS Affiliate Network, please download the guidelines and application below and contact Tom Donaldson, (202) 785-4585.
Affiliate Guidelines, Updated 2015
Affiliate Application, Updated 2015. Download and fill out this Word document.
- NOFAS hosts an affiliate conference call on the second Wednesday of each month at 2:00 P.M. EST.
- The 2015 NOFAS Affiliate Summit will be held June 15-17 in Washington, D.C.
Affiliate Network Agenda
Current priorities involve supporting the inclusion of Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE) in the Diagnostic and Statistical Manual of Mental Health Disorders (DSM-5), published by the American Psychiatric Association in 2013. Although identifying FAS and other conditions under the FASD umbrella is primarily a medical diagnosis, long-established research confirms that mental health and treatable behavioral disorders are common among individuals with FAS. ND-PAE is in the DSM-5 in Section III with other conditions that require further research. Full inclusion could lead to standardized diagnosis, treatment, and reimbursement for practitioners serving the needs of persons with FASD, while maintaining the primary diagnosis as a medical condition.
NOFAS Affiliate Network Executive Committee
Leigh Tenkku-Lepper, PhD, NOFAS-Missouri
Sr. Suzette Fisher, Double ARC
Eileen Bisgard, NOFAS Colorado
Ajeet Charate, Trinity Serivces, Inc.
Peggy Combs-Way, SoCal NOFAS
Amy Hendricks, North Carolina Teratogen Information Service and Fetal Alcohol Prevention Program